Impact of biobanks on research outcomes in rare diseases: a systematic review

by Monique Garcia, Jenny Downs, Alyce Russell, Wei Wang
Published 2018-11-01

Unraveling the Optimum Latent Structure of Attention-Deficit/Hyperactivity Disorder: Evidence Supporting ICD and HiTOP Frameworks

by Rapson Gomez, Lu Liu, Lu Liu, Robert Krueger, Vasileios Stavropoulos, Jenny Downs, Jenny Downs, David Preece, Stephen Houghton, Wai Chen, Wai Chen, Wai Chen, Wai Chen
Published 2021-05-01

Autonomic breathing abnormalities in Rett syndrome: caregiver perspectives in an international database study

by Jessica Mackay, Jenny Downs, Kingsley Wong, Jane Heyworth, Amy Epstein, Helen Leonard
Published 2017-04-01

Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational c...

by Portia Ho, Caroline Bulsara, Shane Patman, Max Bulsara, Jenny Downs, Anne-Marie Hill
Published 2018-07-01

Validating the Rett Syndrome Gross Motor Scale.

by Jenny Downs, Michelle Stahlhut, Kingsley Wong, Birgit Syhler, Anne-Marie Bisgaard, Peter Jacoby, Helen Leonard
Published 2016-01-01

Are preterm birth and intra-uterine growth restriction more common in Western Australian children of immigrant backgrounds? A population based data linkage study

by Ifrah Abdullahi, Kingsley Wong, Emma Glasson, Raewyn Mutch, Nicholas de Klerk, Jenny Downs, Sarah Cherian, Helen Leonard
Published 2019-08-01

Environmental enrichment intervention for Rett syndrome: an individually randomised stepped wedge trial

by Jenny Downs, Jenny Rodger, Chen Li, Xuesong Tan, Nan Hu, Kingsley Wong, Nicholas de Klerk, Helen Leonard
Published 2018-01-01

Caregiver-mediated interventions to support self-regulation among infants and young children (0–5 years): a protocol for a realist review

by Jeneva L Ohan, Rhonda Marriott, Jenny Downs, Justin D Smith, Amy Finlay-Jones, Monique Robinson, Jetro Emanel Ang, Elaine Bennett, Sally Kendall, Keerthi Kottampally, Sheila Krogh-Jespersen, Yi Huey Lim, Leigha A. MacNeill, Vincent Mancini, Helen Milroy, Lauren S Wakschlag
Published 2021-06-01

Clinical Guidelines for Management of Bone Health in Rett Syndrome Based on Expert Consensus and Available Evidence.

by Amanda Jefferson, Helen Leonard, Aris Siafarikas, Helen Woodhead, Sue Fyfe, Leanne M Ward, Craig Munns, Kathleen Motil, Daniel Tarquinio, Jay R Shapiro, Torkel Brismar, Bruria Ben-Zeev, Anne-Marie Bisgaard, Giangennaro Coppola, Carolyn Ellaway, Michael Freilinger, Suzanne Geerts, Peter Humphreys, Mary Jones, Jane Lane, Gunilla Larsson, Meir Lotan, Alan Percy, Mercedes Pineda, Steven Skinner, Birgit Syhler, Sue Thompson, Batia Weiss, Ingegerd Witt Engerström, Jenny Downs
Published 2016-01-01