Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges
<p>Abstract</p> <p>Background</p> <p>Universal newborn screening for early detection of children affected by sickle cell disorders and cystic fibrosis is currently being implemented across England. Parents of infants identified as carriers of these disorders must also b...
Main Authors: | Ulph Fiona, Qureshi Nadeem, Parker Hilda, Kai Joe |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2007-12-01
|
Series: | BMC Health Services Research |
Online Access: | http://www.biomedcentral.com/1472-6963/7/203 |
Similar Items
-
Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice
by: J Kai, et al.
Published: (2009-11-01) -
Psychological Impact on Parents of an Inconclusive Diagnosis Following Newborn Bloodspot Screening for Cystic Fibrosis: A Qualitative Study
by: Faye Johnson, et al.
Published: (2019-06-01) -
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis
by: Rachael E Armstrong, et al.
Published: (2020-05-01) -
Antenatal carrier screening for cystic fibrosis
by: Miedzybrodzka, Zofia Helena
Published: (1995) -
Cystic fibrosis diagnosed by state newborn screening: Or is it?
by: Maura Fox, et al.
Published: (2020-07-01)