“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
Adherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver...
Main Authors: | , , , , , , , , , , , |
---|---|
Format: | Article |
Language: | English |
Published: |
SAGE Publishing
2021-03-01
|
Series: | Journal of the International Association of Providers of AIDS Care |
Online Access: | https://doi.org/10.1177/23259582211000525 |
id |
doaj-5a973c552448476e898dad9390b2722b |
---|---|
record_format |
Article |
spelling |
doaj-5a973c552448476e898dad9390b2722b2021-03-13T03:04:29ZengSAGE PublishingJournal of the International Association of Providers of AIDS Care2325-95822021-03-012010.1177/23259582211000525“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South AfricaCamerin A. Rencken ScM0Abigail D. Harrison PhD, MPH1Bulelwa Mtukushe BA2Scarlett Bergam BA3Ariana Pather MPH4Rebecca Sher MBChB, DCH5Bianca J. Davidson MBChB6Michelle Carrihill MBChB, DCH, FC, MPhil7Mluleki Matiwane IWRM8Caroline Kuo DPhil, MPhil9Omar Galárraga MA, PhD10Jacqueline Hoare MBChB, MRC, FC, MPhil11 Brown University School of Public Health, Providence, RI, USA Department of Behavioral and Social Sciences, Brown University School of Public Health, Providence, RI, USA Department of Psychiatry and Mental Health, University of Cape Town, South Africa Brown University School of Public Health, Providence, RI, USA Brown University School of Public Health, Providence, RI, USA Department of Paediatrics and Child Health, University of Cape Town, South Africa Department of Medicine, University of Cape Town, South Africa Department of Paediatric Endocrinology, University of Cape Town, South Africa Department of Psychiatry and Mental Health, University of Cape Town, South Africa Department of Psychiatry and Mental Health, University of Cape Town, South Africa Department of Health Services, Brown University School of Public Health, Providence, RI, USA Department of Psychiatry and Mental Health, University of Cape Town, South AfricaAdherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver perspectives on peer support groups. Three themes emerged: (1) peer support encouraged adherence to ART, (2) serostatus disclosure outside the family was perceived as difficult, and (3) the peer support group fostered fundamental and meaningful peer relationships for ALHIV. Caregivers felt peer support groups increased self-acceptance and adherence for ALHIV across 3 domains: (1) as motivation for families and adolescents, (2) to increase adolescent independence and maturity, and (3) to help adolescents accept their HIV status and live successfully with HIV. These data highlight the importance of psychosocial support groups for ALHIV and caregivers, illustrating the benefits of a safe space with trusted relationships and open communication.https://doi.org/10.1177/23259582211000525 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Camerin A. Rencken ScM Abigail D. Harrison PhD, MPH Bulelwa Mtukushe BA Scarlett Bergam BA Ariana Pather MPH Rebecca Sher MBChB, DCH Bianca J. Davidson MBChB Michelle Carrihill MBChB, DCH, FC, MPhil Mluleki Matiwane IWRM Caroline Kuo DPhil, MPhil Omar Galárraga MA, PhD Jacqueline Hoare MBChB, MRC, FC, MPhil |
spellingShingle |
Camerin A. Rencken ScM Abigail D. Harrison PhD, MPH Bulelwa Mtukushe BA Scarlett Bergam BA Ariana Pather MPH Rebecca Sher MBChB, DCH Bianca J. Davidson MBChB Michelle Carrihill MBChB, DCH, FC, MPhil Mluleki Matiwane IWRM Caroline Kuo DPhil, MPhil Omar Galárraga MA, PhD Jacqueline Hoare MBChB, MRC, FC, MPhil “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa Journal of the International Association of Providers of AIDS Care |
author_facet |
Camerin A. Rencken ScM Abigail D. Harrison PhD, MPH Bulelwa Mtukushe BA Scarlett Bergam BA Ariana Pather MPH Rebecca Sher MBChB, DCH Bianca J. Davidson MBChB Michelle Carrihill MBChB, DCH, FC, MPhil Mluleki Matiwane IWRM Caroline Kuo DPhil, MPhil Omar Galárraga MA, PhD Jacqueline Hoare MBChB, MRC, FC, MPhil |
author_sort |
Camerin A. Rencken ScM |
title |
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa |
title_short |
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa |
title_full |
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa |
title_fullStr |
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa |
title_full_unstemmed |
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa |
title_sort |
“those people motivate and inspire me to take my treatment.” peer support for adolescents living with hiv in cape town, south africa |
publisher |
SAGE Publishing |
series |
Journal of the International Association of Providers of AIDS Care |
issn |
2325-9582 |
publishDate |
2021-03-01 |
description |
Adherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver perspectives on peer support groups. Three themes emerged: (1) peer support encouraged adherence to ART, (2) serostatus disclosure outside the family was perceived as difficult, and (3) the peer support group fostered fundamental and meaningful peer relationships for ALHIV. Caregivers felt peer support groups increased self-acceptance and adherence for ALHIV across 3 domains: (1) as motivation for families and adolescents, (2) to increase adolescent independence and maturity, and (3) to help adolescents accept their HIV status and live successfully with HIV. These data highlight the importance of psychosocial support groups for ALHIV and caregivers, illustrating the benefits of a safe space with trusted relationships and open communication. |
url |
https://doi.org/10.1177/23259582211000525 |
work_keys_str_mv |
AT camerinarenckenscm thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT abigaildharrisonphdmph thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT bulelwamtukusheba thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT scarlettbergamba thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT arianapathermph thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT rebeccashermbchbdch thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT biancajdavidsonmbchb thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT michellecarrihillmbchbdchfcmphil thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT mlulekimatiwaneiwrm thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT carolinekuodphilmphil thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT omargalarragamaphd thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica AT jacquelinehoarembchbmrcfcmphil thosepeoplemotivateandinspiremetotakemytreatmentpeersupportforadolescentslivingwithhivincapetownsouthafrica |
_version_ |
1724222289940054016 |