“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa

Adherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver...

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Main Authors: Camerin A. Rencken ScM, Abigail D. Harrison PhD, MPH, Bulelwa Mtukushe BA, Scarlett Bergam BA, Ariana Pather MPH, Rebecca Sher MBChB, DCH, Bianca J. Davidson MBChB, Michelle Carrihill MBChB, DCH, FC, MPhil, Mluleki Matiwane IWRM, Caroline Kuo DPhil, MPhil, Omar Galárraga MA, PhD, Jacqueline Hoare MBChB, MRC, FC, MPhil
Format: Article
Language:English
Published: SAGE Publishing 2021-03-01
Series:Journal of the International Association of Providers of AIDS Care
Online Access:https://doi.org/10.1177/23259582211000525
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spelling doaj-5a973c552448476e898dad9390b2722b2021-03-13T03:04:29ZengSAGE PublishingJournal of the International Association of Providers of AIDS Care2325-95822021-03-012010.1177/23259582211000525“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South AfricaCamerin A. Rencken ScM0Abigail D. Harrison PhD, MPH1Bulelwa Mtukushe BA2Scarlett Bergam BA3Ariana Pather MPH4Rebecca Sher MBChB, DCH5Bianca J. Davidson MBChB6Michelle Carrihill MBChB, DCH, FC, MPhil7Mluleki Matiwane IWRM8Caroline Kuo DPhil, MPhil9Omar Galárraga MA, PhD10Jacqueline Hoare MBChB, MRC, FC, MPhil11 Brown University School of Public Health, Providence, RI, USA Department of Behavioral and Social Sciences, Brown University School of Public Health, Providence, RI, USA Department of Psychiatry and Mental Health, University of Cape Town, South Africa Brown University School of Public Health, Providence, RI, USA Brown University School of Public Health, Providence, RI, USA Department of Paediatrics and Child Health, University of Cape Town, South Africa Department of Medicine, University of Cape Town, South Africa Department of Paediatric Endocrinology, University of Cape Town, South Africa Department of Psychiatry and Mental Health, University of Cape Town, South Africa Department of Psychiatry and Mental Health, University of Cape Town, South Africa Department of Health Services, Brown University School of Public Health, Providence, RI, USA Department of Psychiatry and Mental Health, University of Cape Town, South AfricaAdherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver perspectives on peer support groups. Three themes emerged: (1) peer support encouraged adherence to ART, (2) serostatus disclosure outside the family was perceived as difficult, and (3) the peer support group fostered fundamental and meaningful peer relationships for ALHIV. Caregivers felt peer support groups increased self-acceptance and adherence for ALHIV across 3 domains: (1) as motivation for families and adolescents, (2) to increase adolescent independence and maturity, and (3) to help adolescents accept their HIV status and live successfully with HIV. These data highlight the importance of psychosocial support groups for ALHIV and caregivers, illustrating the benefits of a safe space with trusted relationships and open communication.https://doi.org/10.1177/23259582211000525
collection DOAJ
language English
format Article
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author Camerin A. Rencken ScM
Abigail D. Harrison PhD, MPH
Bulelwa Mtukushe BA
Scarlett Bergam BA
Ariana Pather MPH
Rebecca Sher MBChB, DCH
Bianca J. Davidson MBChB
Michelle Carrihill MBChB, DCH, FC, MPhil
Mluleki Matiwane IWRM
Caroline Kuo DPhil, MPhil
Omar Galárraga MA, PhD
Jacqueline Hoare MBChB, MRC, FC, MPhil
spellingShingle Camerin A. Rencken ScM
Abigail D. Harrison PhD, MPH
Bulelwa Mtukushe BA
Scarlett Bergam BA
Ariana Pather MPH
Rebecca Sher MBChB, DCH
Bianca J. Davidson MBChB
Michelle Carrihill MBChB, DCH, FC, MPhil
Mluleki Matiwane IWRM
Caroline Kuo DPhil, MPhil
Omar Galárraga MA, PhD
Jacqueline Hoare MBChB, MRC, FC, MPhil
“Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
Journal of the International Association of Providers of AIDS Care
author_facet Camerin A. Rencken ScM
Abigail D. Harrison PhD, MPH
Bulelwa Mtukushe BA
Scarlett Bergam BA
Ariana Pather MPH
Rebecca Sher MBChB, DCH
Bianca J. Davidson MBChB
Michelle Carrihill MBChB, DCH, FC, MPhil
Mluleki Matiwane IWRM
Caroline Kuo DPhil, MPhil
Omar Galárraga MA, PhD
Jacqueline Hoare MBChB, MRC, FC, MPhil
author_sort Camerin A. Rencken ScM
title “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
title_short “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
title_full “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
title_fullStr “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
title_full_unstemmed “Those People Motivate and Inspire Me to Take My Treatment.” Peer Support for Adolescents Living With HIV in Cape Town, South Africa
title_sort “those people motivate and inspire me to take my treatment.” peer support for adolescents living with hiv in cape town, south africa
publisher SAGE Publishing
series Journal of the International Association of Providers of AIDS Care
issn 2325-9582
publishDate 2021-03-01
description Adherence to antiretroviral therapy (ART) and psychosocial support to manage stigma and disclosure is essential for adolescents living with HIV (ALHIV). Peer support groups can help ALHIV and their families live successfully with HIV. This qualitative study aimed to examine adolescent and caregiver perspectives on peer support groups. Three themes emerged: (1) peer support encouraged adherence to ART, (2) serostatus disclosure outside the family was perceived as difficult, and (3) the peer support group fostered fundamental and meaningful peer relationships for ALHIV. Caregivers felt peer support groups increased self-acceptance and adherence for ALHIV across 3 domains: (1) as motivation for families and adolescents, (2) to increase adolescent independence and maturity, and (3) to help adolescents accept their HIV status and live successfully with HIV. These data highlight the importance of psychosocial support groups for ALHIV and caregivers, illustrating the benefits of a safe space with trusted relationships and open communication.
url https://doi.org/10.1177/23259582211000525
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