The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress

The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress

Patients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlyin...

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Bibliographic Details
Main Authors: Andrea B. Troxel, Jennifer A. Frontera, Carolina Mendoza-Puccini
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-01-01
Series:Frontiers in Neurology
Subjects:
COVID-19
registry
neurology
epidemiology
patient privacy
rare conditions
Online Access:https://www.frontiersin.org/articles/10.3389/fneur.2020.615061/full
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spelling doaj-abc8468f3e62456c89f5e5e914d8166d2021-01-15T05:05:57ZengFrontiers Media S.A.Frontiers in Neurology1664-22952021-01-011110.3389/fneur.2020.615061615061The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and ProgressAndrea B. Troxel0Jennifer A. Frontera1Carolina Mendoza-Puccini2Department of Population Health, New York University Grossman School of Medicine, New York, NY, United StatesDepartment of Neurology, New York University Grossman School of Medicine, New York, NY, United StatesDivision of Clinical Research, National Institute of Neurological Disorders and Stroke, Bethesda, MD, United StatesPatients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlying conditions. A national resource to collect information and/or biospecimens regarding neurological complications of COVID-19 offers an opportunity for broad representation, harmonization, and rapid learning, all while ensuring robust protection of confidential information through the use of global unique identifiers to protect patient privacy.https://www.frontiersin.org/articles/10.3389/fneur.2020.615061/fullCOVID-19registryneurologyepidemiologypatient privacyrare conditions
collection DOAJ
language English
format Article
sources DOAJ
author Andrea B. Troxel
Jennifer A. Frontera
Carolina Mendoza-Puccini
spellingShingle Andrea B. Troxel
Jennifer A. Frontera
Carolina Mendoza-Puccini
The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
Frontiers in Neurology
COVID-19
registry
neurology
epidemiology
patient privacy
rare conditions
author_facet Andrea B. Troxel
Jennifer A. Frontera
Carolina Mendoza-Puccini
author_sort Andrea B. Troxel
title The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
title_short The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
title_full The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
title_fullStr The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
title_full_unstemmed The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress
title_sort national institutes of health covid-19 neurodatabank and neurobiobank: a national resource for learning, discovery, and progress
publisher Frontiers Media S.A.
series Frontiers in Neurology
issn 1664-2295
publishDate 2021-01-01
description Patients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlying conditions. A national resource to collect information and/or biospecimens regarding neurological complications of COVID-19 offers an opportunity for broad representation, harmonization, and rapid learning, all while ensuring robust protection of confidential information through the use of global unique identifiers to protect patient privacy.
topic COVID-19
registry
neurology
epidemiology
patient privacy
rare conditions
url https://www.frontiersin.org/articles/10.3389/fneur.2020.615061/full
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