Multidisciplinary approach for patients with nephropathic cystinosis: model for care in a rare and chronic renal disease

Abstract Care for patients with chronic and rare diseases is complex, especially considering the lack of knowledge about the disease, which makes early and precise diagnosis difficult, as well as the need for specific tests, sometimes of high complexity and cost. Added to these factors are difficult...

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Bibliographic Details
Main Authors: Maria Helena Vaisbich, Carla Aline Fernandes Satiro, Deborah Roz, Debora de Almeida Domingues Nunes, Ana Carola H Lobo Messa, Camila Lanetzki, Juliana Caires de Oliveira Achili Ferreira
Format: Article
Published: Sociedade Brasileira de Nefrologia 2018-11-01
Series:Brazilian Journal of Nephrology
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