Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities

In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed,...

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Main Authors: Alecia Samuels, Shakila Dada, Karin Van Niekerk, Patrik Arvidsson, Karina Huus
Format: Article
Language:English
Published: MDPI AG 2020-09-01
Series:International Journal of Environmental Research and Public Health
Subjects:
Online Access:https://www.mdpi.com/1660-4601/17/18/6702
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spelling doaj-f3f9f1f3ee1d40dab425260eccb736d92020-11-25T03:07:15ZengMDPI AGInternational Journal of Environmental Research and Public Health1661-78271660-46012020-09-01176702670210.3390/ijerph17186702Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday ActivitiesAlecia Samuels0Shakila Dada1Karin Van Niekerk2Patrik Arvidsson3Karina Huus4Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCentre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCentre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCHILD Research Group, Swedish Institute for Disability Research, Jönköping University, 55111 Jönköping, SwedenCHILD Research Group, Swedish Institute for Disability Research, Jönköping University, 55111 Jönköping, SwedenIn a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS.https://www.mdpi.com/1660-4601/17/18/6702participationattendancechildren with intellectual disabilitieslow- and middle-income countryself-reportPicture my Participation
collection DOAJ
language English
format Article
sources DOAJ
author Alecia Samuels
Shakila Dada
Karin Van Niekerk
Patrik Arvidsson
Karina Huus
spellingShingle Alecia Samuels
Shakila Dada
Karin Van Niekerk
Patrik Arvidsson
Karina Huus
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
International Journal of Environmental Research and Public Health
participation
attendance
children with intellectual disabilities
low- and middle-income country
self-report
Picture my Participation
author_facet Alecia Samuels
Shakila Dada
Karin Van Niekerk
Patrik Arvidsson
Karina Huus
author_sort Alecia Samuels
title Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_short Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_full Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_fullStr Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_full_unstemmed Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_sort children in south africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities
publisher MDPI AG
series International Journal of Environmental Research and Public Health
issn 1661-7827
1660-4601
publishDate 2020-09-01
description In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS.
topic participation
attendance
children with intellectual disabilities
low- and middle-income country
self-report
Picture my Participation
url https://www.mdpi.com/1660-4601/17/18/6702
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