Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed,...
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doaj-f3f9f1f3ee1d40dab425260eccb736d92020-11-25T03:07:15ZengMDPI AGInternational Journal of Environmental Research and Public Health1661-78271660-46012020-09-01176702670210.3390/ijerph17186702Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday ActivitiesAlecia Samuels0Shakila Dada1Karin Van Niekerk2Patrik Arvidsson3Karina Huus4Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCentre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCentre for Augmentative and Alternative Communication, University of Pretoria, Pretoria 0028, South AfricaCHILD Research Group, Swedish Institute for Disability Research, Jönköping University, 55111 Jönköping, SwedenCHILD Research Group, Swedish Institute for Disability Research, Jönköping University, 55111 Jönköping, SwedenIn a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS.https://www.mdpi.com/1660-4601/17/18/6702participationattendancechildren with intellectual disabilitieslow- and middle-income countryself-reportPicture my Participation |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Alecia Samuels Shakila Dada Karin Van Niekerk Patrik Arvidsson Karina Huus |
spellingShingle |
Alecia Samuels Shakila Dada Karin Van Niekerk Patrik Arvidsson Karina Huus Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities International Journal of Environmental Research and Public Health participation attendance children with intellectual disabilities low- and middle-income country self-report Picture my Participation |
author_facet |
Alecia Samuels Shakila Dada Karin Van Niekerk Patrik Arvidsson Karina Huus |
author_sort |
Alecia Samuels |
title |
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities |
title_short |
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities |
title_full |
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities |
title_fullStr |
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities |
title_full_unstemmed |
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities |
title_sort |
children in south africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities |
publisher |
MDPI AG |
series |
International Journal of Environmental Research and Public Health |
issn |
1661-7827 1660-4601 |
publishDate |
2020-09-01 |
description |
In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS. |
topic |
participation attendance children with intellectual disabilities low- and middle-income country self-report Picture my Participation |
url |
https://www.mdpi.com/1660-4601/17/18/6702 |
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