| Summary: | 碩士 === 長榮大學 === 護理學系碩士班 === 99 === The purpose of this study was to explore the illness experience and illness-related behaviors in patients with open pulmonary tuberculosis. Data were collected through a qualitative research design, in-depth interview, and mining semi-structured interview. This study recruited nine open pulmonary tuberculosis patients of a regional teaching hospital in southern Taiwan from May 2010 to September 2010.
The findings include four themes and thirteen clusters:(1) The chaos of pulmonary tuberculosis before and after diagnosis; (2) suffering from the treatment process; (3) facing social stigma of pulmonary tuberculosis; (4) fighting tuberculosis by heaven and themselves.
The findings will not only help medical and nursing professionals to understand open pulmonary tuberculosis patients’ illness experience and inner world, but also provide adequate medical and necessary care to the patients. Several recommendations are made for medical care personnel. (1)Administrative aspects: to maintain patients’ interpersonal relationships and to ensure their livelihood, it suggests that the government institutions and relative hospitals may apply those results to publish health education handbooks, films, as well as videos to correct the negative impressions of social stigma in patients with pulmonary tuberculosis. (2)Clinical aspects: Future case reports, nursing projects and research can more focus on illness experience of open pulmonary tuberculosis patients. It is also important to establish patient supporting groups; strengthen families and social supporting system to promote doctor-patient communication. Moreover, providing sufficient illness information is needed to maintain positive relations between professionals and patients. (3) Educational aspects: medical schools or hospitals could plan training courses about culture of Anthropology, culture of caring, caring skills to deep understand patients’ voices, explore their care needs and provide what they really want. (4) Research aspects: the results include four themes and thirteen clusters obtained from the open pulmonary tuberculosis patients’ experience and illness-related behaviors. Thus, the findings could provide as a reference for future nursing research.
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