Vacillating between distress and adaptation : a multi-perspective account of lived experiences of thalassemia major
Thalassemia major is a recessively inherited haematological disorder, which involves a complete lack or reduction of beta protein in the hemoglobin, causing life-threatening anemia. Management requires patients to have life-long access to a treatment regimen of fortnightly blood transfusions and dai...
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University of Westminster
2011
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| Online Access: | https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.567560 |