Search Results - Colin M. E. Halverson
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Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases by Tom A Doyle, Samantha L Vershaw, Erin Conboy, Colin M E Halverson
Published in JMIR Human Factors (2024-12-01)Get full text
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An evaluation of practices and policies used in genetics clinics across the United States to manage referrals for Ehlers-Danlos and hypermobility syndromes by Lauren Boucher, Berkley Nestler, Daniel Groepper, John Quillin, David Deyle, Colin M.E. Halverson
Published in Genetics in Medicine Open (2025-01-01)Get full text
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Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region by Wendy Wagner, Tom A. Doyle, Clair A. Francomano, Dacre R. T. Knight, Colin M. E. Halverson
Published in Orphanet Journal of Rare Diseases (2024-03-01)Get full text
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