Search Results - Durhane Wong-Rieger

Essential list of medicinal products for rare diseases: recommendations from the IRDiRC Rare Disease Treatment Access Working Group by William A. Gahl, Durhane Wong-Rieger, Virginie Hivert, Rachel Yang, Galliano Zanello, Stephen Groft

Get full text

How can we deliver on the promise of precision medicine in oncology and beyond? A practical roadmap for action by Anne‐Marie Baird, C. Benedikt Westphalen, Sandra Blum, Begonya Nafria, Tanya Knott, Ify Sargeant, Helena Harnik, Nicholas Brooke, Nicole Wicki, Durhane Wong‐Rieger

Get full text

Medical device development and innovation for rare and pediatric populations: a global landscape overview by Marc Dooms, Daniel O’Connor, Tom Melvin, Friederike Mueller, Vasum Peiris, Katie Pohlson, Durhane Wong-Rieger, Anneliene Hechtelt Jonker, On behalf of the IRDiRC WG Medical Technologies for Rare Diseases

Get full text

Strengthening health systems for access to gene therapy in rare genetic disorders by Sonal Bhatia, Yann Le Cam, Juan Carrion, Lauren Diamond, Paul Fennessy, Safiyya Gassman, Felix Gutzwiller, Stephen Kagan, Diana Pankevich, Jennifer Young Maloney, Nitin Mahadev, Martin Schulz, Durhane Wong-Rieger, Paolo Morgese

Get full text

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study by Thierry Martin, Carter Thorne, Brett D Thombs, Vincent Poindron, John Varga, Isabelle Boutron, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Karen Gottesman, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Catherine Fortune, Dominique Godard, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Tatiana Sofia Rodriguez Reyna, Joep Welling, Durhane Wong-Rieger, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Patrick Liang, Joanne Manning, Maria Martin, Ariel Masetto, Sheila Melchor, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Robert Spiera, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Michelle Wilson, Julie Cumin, François Rannou, Daniel E. Furst, Maureen D. Mayes, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Daphna Harel Geneviève Guillot, Shirley Haslam, Sindhu R. Johnson, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Russell J. Steele, Nancy Stephens, Maria E. Suarez-Almazor, Chase Correia, James V. Dunne, Paul R. Fortin, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Kylene Anne Aguila, Mara Cañedo Ayala, Andrea Carboni-Jiménez, Claire Fedoruk, Lydia Tao, Kimberly Turner, Sami Harb, Mekinian Arsene, Nikpour Mandana, Gholizadeh Shadi

Get full text

Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study by Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Andrea Benedetti, Brett D Thombs, Daniel E Furst, Virginia Steen, Paul R Fortin, Vincent Poindron, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Isabelle Boutron, Daphna Harel, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Murray Baron, Karen Gottesman, Maureen D Mayes, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Kim Fligelstone, Catherine Fortune, Tracy Frech, Dominique Godard, Marie Hudson, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Russell J Steele, Maria E Suarez-Almazor, Joep Welling, Durhane Wong-Rieger, Christian Agard, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Sabine Berthier, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, James V Dunne, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Claire Grange, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Patrick Liang, Hélène Maillard, Joanne Manning, Maria Martin, Ariel Masetto, François Maurier, Sheila Melchor, Susanna Proudman, Alexis Régent, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Vincent Sobanski, Robert Spiera, Wendy Stevens, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Shadi Gholizadeh, François Rannou, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Nancy Stephens, Chase Correia, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Lydia Tao, Sami Harb, Elana J Bernstein, Sophia J Sommer, Shirley Haslam Geneviève Guillot, Tatiana Sofia Rodriguez Reyna, Sabrina Hoa, Angelica Bourgeault, Andrea Carboni Jiménez

Get full text