Search Results - Ingunn Westerheim

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  1. 1

    Osteogenesis Imperfecta: A study of the patient journey in 13 European countries by Ingunn Westerheim, Valerie Cormier-Daire, Scott Gilbert, Sean O’Malley, Richard Keen

    Published in Orphanet Journal of Rare Diseases (2024-09-01)
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  2. 2

    The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults by Tracy Hart, Ingunn Westerheim, Taco van Welzenis, Oliver Semler, Cathleen Raggio, Frank Rauch, Ruby Dadzie, Samantha Prince, Lena Lande Wekre

    Published in Orphanet Journal of Rare Diseases (2024-06-01)
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  3. 3

    A systematic literature review of the impact and measurement of mobility impairment in rare bone diseases by Inês Alves, Ingunn Westerheim, Edward C. Hsiao, Jaymin Upadhyay, Luca Sangiorgi, Alexander Artyomenko, Kim Croskery, Juliet Johns, Emma Warnants, Gabor Barton

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  4. 4

    The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults by Taco van Welzenis, Ingunn Westerheim, Tracy Hart, Lena Lande Wekre, Oliver Semler, Frank Rauch, Laetitia Dewavrin, Ruby Dadzie, Samantha Prince, Cathleen Raggio

    Published in BMC Public Health (2024-11-01)
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  5. 5

    The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers by Ingunn Westerheim, Tracy Hart, Taco van Welzenis, Lena Lande Wekre, Oliver Semler, Cathleen Raggio, Michael B. Bober, Maria Rapoport, Samantha Prince, Frank Rauch

    Published in Orphanet Journal of Rare Diseases (2024-03-01)
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  6. 6

    Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions by Muhammad Kassim Javaid, Marina Mordenti, Manila Boarini, Luca Sangiorgi, ERN BOND Working Group, Ingunn Westerheim, Inês Alves, Rebecca Tvedt Skarberg, Natasha M. Appelman-Dijkstra, Corinna Grasemann

    Published in Orphanet Journal of Rare Diseases (2021-11-01)
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  7. 7

    The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review by Maria Rapoport, Michael B. Bober, Cathleen Raggio, Lena Lande Wekre, Frank Rauch, Ingunn Westerheim, Tracy Hart, Taco van Welzenis, Arun Mistry, James Clancy, Lucy Booth, Samantha Prince, Oliver Semler

    Published in Orphanet Journal of Rare Diseases (2023-02-01)
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