Search Results - Lara Bloom

Ehlers–Danlos Society

The Ehlers–Danlos Society is an international nonprofit organization dedicated to patient support, scientific research, advocacy, and increasing awareness for the Ehlers–Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD). The society has organized multiple events around the world in an attempt to raise awareness for EDS and HSD. These events include a rally in Baltimore's Inner Harbor, and a conference in India. The society also organizes symposiums dedicated to research on EDS and HSD. The 2016 symposium resulted in the reclassification of Ehlers–Danlos subtypes. Ehlers–Danlos Society has collaborated with XRP Healthcare to offer a [https://xrphealthcare.com/XRPHSavingsCard.php Prescription Savings Card], providing up to 80% off medications for EDS and HSD, including pain relievers and muscle relaxants. Accepted at over 68,000 U.S. pharmacies, including Walmart, CVS, and Walgreens, this partnership offers significant savings. Provided by Wikipedia
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    Survey of Ehlers‒Danlos Patients’ ophthalmic surgery experiences by Anita Louie, Catherine Meyerle, Clair Francomano, Divya Srikumaran, Farhan Merali, Jefferson J. Doyle, Kraig Bower, Lara Bloom, Michael V. Boland, Nicholas Mahoney, Yassine Daoud, Eric L. Singman

    Published in Molecular Genetics & Genomic Medicine (2020-04-01)
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  2. 2

    Preferences for coordinated care for rare diseases: discrete choice experiment by Stephen Morris, Holly Walton, Amy Simpson, Kerry Leeson-Beevers, Lara Bloom, Amy Hunter, Angus I. G. Ramsay, Naomi J. Fulop, Lyn S. Chitty, Joe Kai, Alastair G. Sutcliffe, Maria Kokocinska, Larissa Kerecuk, Christine A. Taylor, Pei Li Ng

    Published in Orphanet Journal of Rare Diseases (2024-09-01)
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  3. 3

    Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals by Holly Walton, Pei Li Ng, Amy Simpson, Lara Bloom, Lyn S. Chitty, Naomi J. Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Sharon Parkes, Angus I. G. Ramsay, Alastair Sutcliffe, Christine Taylor, Stephen Morris

    Published in Orphanet Journal of Rare Diseases (2023-11-01)
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