Search Results - Lydia Raither
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P047: Exit interviews with caregivers of pediatric patients with classic galactosemia demonstrate the meaningfulness of changes in the ACTION-Galactosemia Kids Trial by Evan Bailey, Jason Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
Published in Genetics in Medicine Open (2024-01-01)Get full text
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Exit interviews with caregivers of pediatric patients with classic galactosemia to explore meaningfulness of changes in the ACTION-galactosemia kids trial by Jason A. Randall, Carolyn Sutter, Stella Wang, Evan Bailey, Lydia Raither, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
Published in Orphanet Journal of Rare Diseases (2025-09-01)Get full text
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Understanding the patient experience of Classic Galactosemia in pediatric and adult patients: increased disease burden, challenges with daily living, and how they evolve over time by Jason A. Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Evan Bailey, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
Published in Journal of Patient-Reported Outcomes (2023-09-01)Get full text
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