Search Results - Michaela Dellenmark-Blom

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  1. 1

    Becoming a parent to a child with birth asphyxia—From a traumatic delivery to living with the experience at home by Alina Heringhaus, Michaela Dellenmark Blom, Helena Wigert

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  2. 2

    The association of feeding difficulties and generic health-related quality of life among children born with esophageal atresia by Sofie Örnö Ax, Michaela Dellenmark-Blom, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky

    Published in Orphanet Journal of Rare Diseases (2023-08-01)
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  3. 3

    Navigating global collaboration: challenges faced by the international network on esophageal atresia by Frédéric Gottrand, Usha Krishnan, Anke Widenmann, Michaela Dellenmark Blom, Luigi Dall’Oglio, Rene Wijnen, Michiel van Wijk, JoAnne Fruithof, Daniel von Allmen, Tom Kovesi, Christophe Faure

    Published in Orphanet Journal of Rare Diseases (2024-08-01)
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  4. 4

    Experiences of symptom burden among young children born with esophageal atresia–tracheoesophageal fistula: a US focus group study by Michaela Dellenmark-Blom, John Bennett, Rosella Micalizzi, Lianne Cole, Kaylee Woods, Lauren Cardoni, Leah Frain, Abdimajid Mohamed, Jessica Yasuda, Peter Ngo, Anke Widenmann, Graham Slater, Benjamin Zendejas

    Published in Orphanet Journal of Rare Diseases (2025-08-01)
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  5. 5

    Psychometric Performance of a Condition-Specific Quality-of-Life Instrument for Dutch Children Born with Esophageal Atresia by Chantal A. ten Kate, Hanneke IJsselstijn, Michaela Dellenmark-Blom, E. Sofie van Tuyll van Serooskerken, Maja Joosten, René M. H. Wijnen, Michiel P. van Wijk, on behalf of the DCEA Study Group

    Published in Children (2022-10-01)
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  6. 6

    Fostering continuous quality improvement in a European rare disease network by Olivia K. C. Spivack, Willemijn F. E. Irvine, Willemijn F. E. Irvine, Steffen Husby, ERNICA Representatives, Tomas Wester, Tomas Wester, René M. H. Wijnen, Mikko Pakarinen, Annette Lemli, Stefaan Tytgat, Frederic Gottrand, JoAnne Fruithof, Annika Mutanen, Merit Tabbers, Mark Bremholm Ellebæk, Jan Deprest, Laurent Storme, Paolo de Coppi, Beverley Power, Alexandra Benachi, Carmen Mesas Burgos, Polona Studen Pauletić, Erwin Ista, Michaela Dellenmark-Blom, Alessio Pini Prato, Anke Widenmann, Romee van Steekelenburg, Marlinde van der Kamp, Daniel Rossi, Iris den Uijl, Roel Bakx, Francesca Russo

    Published in Frontiers in Health Services (2025-05-01)
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  7. 7

    Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries by The International EA-QOL Group, Michaela Dellenmark Blom, Stefanie Witt, Benjamin Zendejas, Ivana Sabolić, Juan Domingo Porras-Hernandez, Natalie Durkin, Simon Eaton, Kjersti Birketvedt, Alba Sánchez Galán, Katalin Eszter Müller, Anna Rozensztrauch, Tutku Soyer, Siqi Li, Anastasia Fourtaka, Corne de Vos, Graham Slater, Ana Špoljarić, John Bennett, Ragnhild Emblem, Zita Andrásdi, Robert Smigiel, Dariusz Patkowski, Çiğdem Ulukaya Durakbaşa, Marina Stilinović, Frederic Gottrand, Dora Škrljak Šoša, Tomislav Luetić, Sylwester Gerus, Shen Yang, Yong Zhao, Yichao Gu, Shuangshuang Li, Diego Rodriguez-Alvirde, Orsolya Kadenczki, Miram Pasini, Vuokko Wallace, Anke Widenmann, Feliciana Milagres Sikwete, Jinshi Huang, Leopoldo Martínez Martínez, Kate Abrahamsson, Shawn Izadi, Benno M Ure, Daniel Sidler, Julia H Quitmann, Jens Dingemann

    Published in Frontiers in Pediatrics (2023-10-01)
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