Search Results - Pascal Borry

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  1. 1

    Reward systems for cohort data sharing: An interview study with funding agencies. by Thijs Devriendt, Mahsa Shabani, Pascal Borry

    Published in PLoS ONE (2023-01-01)
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  2. 2

    Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study by Thijs Devriendt, Pascal Borry, Mahsa Shabani

    Published in Journal of Medical Internet Research (2022-01-01)
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  3. 3

    Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study by Louiza Kalokairinou, Pascal Borry, Heidi C. Howard

    Published in New Genetics and Society (2019-10-01)
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  4. 4

    From the principles of genomic data sharing to the practices of data access committees by Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry

    Published in EMBO Molecular Medicine (2015-03-01)
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  5. 5

    Opt-in or out? Public perspectives on forensic DNA kinship investigations within the Dutch-speaking community by Sofie Claerhout, Hanna Noppe, Betty Cohn, Pascal Borry

    Published in Heliyon (2024-05-01)
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  6. 6

    Vulnerability in research ethics: A systematic review of policy guidelines and documents. by Asia Grigis, Giorgia Beretta, Pascal Borry, Virginia Sanchini

    Published in PLoS ONE (2025-01-01)
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  7. 7

    Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study by Evelien De Sutter, Pascal Borry, Isabelle Huys, Liese Barbier

    Published in BMC Health Services Research (2023-02-01)
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  8. 8

    Personalized and long-term electronic informed consent in clinical research: stakeholder views by Evelien De Sutter, Pascal Borry, David Geerts, Isabelle Huys

    Published in BMC Medical Ethics (2021-07-01)
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  9. 9

    The author who wasn't there? Fairness and attribution in publications following access to population biobanks. by Erika Kleiderman, Amy Pack, Pascal Borry, Ma'n Zawati

    Published in PLoS ONE (2018-01-01)
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  10. 10

    Olympic Glory Vs. Athlete Safety: Ethical Lessons From the Seine Water Quality Controversy by Giulia Sesa, Giulia Sesa, Pascal Borry, Sigmund Loland, Silvia Camporesi

    Published in Public Health Reviews (2024-11-01)
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  11. 11

    Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union by Evelien De Sutter, Janos Meszaros, Pascal Borry, Isabelle Huys, Isabelle Huys

    Published in Frontiers in Medicine (2022-05-01)
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  12. 12

    The social shaping of a diagnosis in Next Generation Sequencing by Janneke M.L. Kuiper, Pascal Borry, Danya F. Vears, Ine Van Hoyweghen

    Published in New Genetics and Society (2021-10-01)
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  13. 13

    Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists’ views by Sandra Janssens, Davit Chokoshvili, Danya F. Vears, Anne De Paepe, Pascal Borry

    Published in BMC Medical Ethics (2017-08-01)
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  14. 14

    Newspaper coverage of biobanks by Ubaka Ogbogu, Maeghan Toews, Adam Ollenberger, Pascal Borry, Helene Nobile, Manuela Bergmann, Timothy Caulfield

    Published in PeerJ (2014-07-01)
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  15. 15

    Personalized and longitudinal electronic informed consent in clinical trials: How to move the needle? by Evelien De Sutter, Liese Barbier, Pascal Borry, David Geerts, John P.A. Ioannidis, Isabelle Huys

    Published in Digital Health (2024-01-01)
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  16. 16

    Testing and Practical Implementation of a User-Friendly Personalized and Long-Term Electronic Informed Consent Prototype in Clinical Research: Mixed Methods Study by Evelien De Sutter, David Geerts, Koen Yskout, Stef Verreydt, Pascal Borry, Liese Barbier, Isabelle Huys

    Published in Journal of Medical Internet Research (2023-12-01)
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  17. 17

    Crowdsourcing smartphone data for biomedical research: Ethical and legal questions by Michael Lang, Kyle McKibbin, Mahsa Shabani, Pascal Borry, Vincent Gautrais, Kamiel Verbeke, Ma’n H Zawati

    Published in Digital Health (2023-09-01)
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  18. 18

    Co-creation with research participants to inform the design of electronic informed consent by Evelien De Sutter, David Geerts, Pascal Borry, Kristien Coteur, Dorien Bamps, Heleen Marynissen, Els Ampe, Els Geenens, Marleen Depré, Isabelle Huys

    Published in Digital Health (2022-06-01)
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  19. 19

    Using provocative design to foster electronic informed consent innovation by Evelien De Sutter, Stef Verreydt, Koen Yskout, David Geerts, Pascal Borry, An Outtier, Marc Ferrante, Corinne Vandermeulen, Nele Vanmechelen, Bart Van der Schueren, Isabelle Huys

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  20. 20

    Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory study by Teodora Lalova-Spinks, Teodora Lalova-Spinks, Evelien De Sutter, Peggy Valcke, Els Kindt, Stephane Lejeune, Anastassia Negrouk, Griet Verhenneman, Griet Verhenneman, Jean-Jacques Derèze, Ruth Storme, Pascal Borry, Janos Meszaros, Janos Meszaros, Isabelle Huys

    Published in Frontiers in Medicine (2022-10-01)
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