Search Results - Susan D. Mathias

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  1. 1

    Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria by Susan D. Mathias, Laurie Burke, Hilary H. Colwell, George Mensing, Will Savage, Hetanshi Naik

    Published in Journal of Patient-Reported Outcomes (2023-11-01)
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  2. 2

    Fatigue is distinct from sleepiness and negatively impacts individuals living with obstructive sleep apnea (OSA): results from qualitative research of individuals with OSA by Helene A. Emsellem, Hilary H. Colwell, John Cronin, Ronald H. Farkas, Susan D. Mathias

    Published in Health and Quality of Life Outcomes (2025-03-01)
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  3. 3

    Symptoms and impacts in anemia of chronic kidney disease by Susan D. Mathias, Steven I. Blum, Vanja Sikirica, Kirsten L. Johansen, Hilary H. Colwell, Tony Okoro

    Published in Journal of Patient-Reported Outcomes (2020-07-01)
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  4. 4

    Self‐Reported Liver Disease and the Burden of Erythropoietic Protoporphyria by Hetanshi Naik, Kristen Wheeden, Hilary H. Colwell, Susan D. Mathias, Chelsea Norregaard, Melanie Chin, William Savage, Manisha Balwani

    Published in JIMD Reports (2025-05-01)
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  5. 5

    Validation of the sunlight exposure diary and the erythropoietic protoporphyria impact questionnaire (EPIQ) by Hetanshi Naik, Susan D. Mathias, Michelle P. Turner, Megan O’Grady, Chelsea Norregaard, Hilary H. Colwell, William Savage, Melanie Chin

    Published in Orphanet Journal of Rare Diseases (2025-09-01)
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  6. 6

    Qualitative and psychometric evaluation of the PROMIS®-Fatigue SF-7a scale to assess fatigue in patients with moderately to severely active inflammatory bowel disease by Brian G. Feagan, William J. Sandborn, Bruce E. Sands, Yan Liu, Marion Vetter, Susan D. Mathias, Kuan-Hsiang Gary Huang, Jewel Johanns, Matthew Germinaro, Chenglong Han

    Published in Journal of Patient-Reported Outcomes (2023-11-01)
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    Article


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