Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm
Autism research is evolving from a medical paradigm， which emphasizes deficits and interventions， to a neurodiversity paradigm that values autism as an integral part of human diversity. Historically， the medical paradigm’s focus on “rescue” efforts has distanced researchers from the autistic communi...
| 發表在: | Xin yixue |
|---|---|
| 主要作者: | |
| 格式: | Article |
| 語言: | 中文 |
| 出版: |
Editorial Office of Journal of New Medicine
2024-12-01
|
| 主題: | |
| 在線閱讀: | https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748569842-2060824518.pdf |
| _version_ | 1849892130628042752 |
|---|---|
| author | PI Lei, QING Shan |
| author_facet | PI Lei, QING Shan |
| author_sort | PI Lei, QING Shan |
| collection | DOAJ |
| container_title | Xin yixue |
| description | Autism research is evolving from a medical paradigm， which emphasizes deficits and interventions， to a neurodiversity paradigm that values autism as an integral part of human diversity. Historically， the medical paradigm’s focus on “rescue” efforts has distanced researchers from the autistic community， often failing to address the community’s real needs. In contrast， the neurodiversity paradigm advocates a comprehensive understanding of autism and the adoption of participatory research practices. This shift encourages active collaboration between researchers and autistic individuals， fostering inclusive knowledge production that is both meaningful and impactful for the autistic community. However， achieving this collaborative approach requires dismantling social barriers， such as power imbalances， that hinders effective partnership. This article explores the principles and practice of a neurodiversity-aligned participatory research approach and proposes a co-production framework designed to support researchers and the autistic community in advancing autism research that is relevant， respectful， and responsive. |
| format | Article |
| id | doaj-art-044bc99d6d484372a809f302e1bb4fd8 |
| institution | Directory of Open Access Journals |
| issn | 0253-9802 |
| language | zho |
| publishDate | 2024-12-01 |
| publisher | Editorial Office of Journal of New Medicine |
| record_format | Article |
| spelling | doaj-art-044bc99d6d484372a809f302e1bb4fd82025-08-20T01:03:21ZzhoEditorial Office of Journal of New MedicineXin yixue0253-98022024-12-01551297197810.3969/j.issn.0253-9802.2024.12.003Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigmPI Lei, QING Shan01. Qingshan Aspie Guangzhou 510000， China;2. Investigation of Identity in Chinese Autistic People （iCAP） Advisory Collaboration Group， Guangzhou 510000， ChinaAutism research is evolving from a medical paradigm， which emphasizes deficits and interventions， to a neurodiversity paradigm that values autism as an integral part of human diversity. Historically， the medical paradigm’s focus on “rescue” efforts has distanced researchers from the autistic community， often failing to address the community’s real needs. In contrast， the neurodiversity paradigm advocates a comprehensive understanding of autism and the adoption of participatory research practices. This shift encourages active collaboration between researchers and autistic individuals， fostering inclusive knowledge production that is both meaningful and impactful for the autistic community. However， achieving this collaborative approach requires dismantling social barriers， such as power imbalances， that hinders effective partnership. This article explores the principles and practice of a neurodiversity-aligned participatory research approach and proposes a co-production framework designed to support researchers and the autistic community in advancing autism research that is relevant， respectful， and responsive.https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748569842-2060824518.pdfautism|autism spectrum disorder （asd）|neurodiversity|participatory research|co-production |
| spellingShingle | PI Lei, QING Shan Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm autism|autism spectrum disorder （asd）|neurodiversity|participatory research|co-production |
| title | Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm |
| title_full | Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm |
| title_fullStr | Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm |
| title_full_unstemmed | Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm |
| title_short | Establishing a co-production framework between researchers and the autistic community: embracing the neurodiversity paradigm |
| title_sort | establishing a co production framework between researchers and the autistic community embracing the neurodiversity paradigm |
| topic | autism|autism spectrum disorder （asd）|neurodiversity|participatory research|co-production |
| url | https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748569842-2060824518.pdf |
| work_keys_str_mv | AT pileiqingshan establishingacoproductionframeworkbetweenresearchersandtheautisticcommunityembracingtheneurodiversityparadigm |