Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China
Thalassemia is an inherited hemoglobin disorder clinically categorized into alpha and beta thalassemia. Severe beta-thalassemia patients commonly experience anemia during infancy and progressively deteriorate, necessitating long-term blood transfusion to sustain life. The reliance on the blood trans...
| Published in: | Zhongguo gonggong weisheng |
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| Main Authors: | , , , , , , |
| Format: | Article |
| Language: | Chinese |
| Published: |
Editorial Office of Chinese Journal of Public Health
2023-10-01
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| Subjects: | |
| Online Access: | https://www.zgggws.com/article/doi/10.11847/zgggws1141960 |
| _version_ | 1850353072779296768 |
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| author | Jingyi QIAO Jian MING Jiaqi YUAN Bingxing LUO Junling WENG Juntao YAN Yingyao CHEN |
| author_facet | Jingyi QIAO Jian MING Jiaqi YUAN Bingxing LUO Junling WENG Juntao YAN Yingyao CHEN |
| author_sort | Jingyi QIAO |
| collection | DOAJ |
| container_title | Zhongguo gonggong weisheng |
| description | Thalassemia is an inherited hemoglobin disorder clinically categorized into alpha and beta thalassemia. Severe beta-thalassemia patients commonly experience anemia during infancy and progressively deteriorate, necessitating long-term blood transfusion to sustain life. The reliance on the blood transfusion significantly diminishes the quality of life of the patients, thereby imposing substantial economic and psychological hardships not only on the disease sufferers but also on the patients' families and the society as a whole. Thalassemia is considered as one of the global public health concerns by World Health Organization. In the paper, we summarize researches on epidemiological and disease burden of β-thalassemia and health service utilization of β-thalassemia patients in China. |
| format | Article |
| id | doaj-art-7c8314ee287c492ebd4793b77b69c962 |
| institution | Directory of Open Access Journals |
| issn | 1001-0580 |
| language | zho |
| publishDate | 2023-10-01 |
| publisher | Editorial Office of Chinese Journal of Public Health |
| record_format | Article |
| spelling | doaj-art-7c8314ee287c492ebd4793b77b69c9622025-08-19T23:08:41ZzhoEditorial Office of Chinese Journal of Public HealthZhongguo gonggong weisheng1001-05802023-10-0139101354135810.11847/zgggws11419601141960Progress in researches on disease burden and health service utilization of beta-thalassemia patients in ChinaJingyi QIAO0Jian MING1Jiaqi YUAN2Bingxing LUO3Junling WENG4Juntao YAN5Yingyao CHEN6National Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaNational Health Commission Key Laboratory of Health Technology Assessment, School of Public Health, Fudan University, Shanghai 200032, ChinaThalassemia is an inherited hemoglobin disorder clinically categorized into alpha and beta thalassemia. Severe beta-thalassemia patients commonly experience anemia during infancy and progressively deteriorate, necessitating long-term blood transfusion to sustain life. The reliance on the blood transfusion significantly diminishes the quality of life of the patients, thereby imposing substantial economic and psychological hardships not only on the disease sufferers but also on the patients' families and the society as a whole. Thalassemia is considered as one of the global public health concerns by World Health Organization. In the paper, we summarize researches on epidemiological and disease burden of β-thalassemia and health service utilization of β-thalassemia patients in China.https://www.zgggws.com/article/doi/10.11847/zgggws1141960β-thalassemiaepidemiological burdendisease burdenhealth service utilization |
| spellingShingle | Jingyi QIAO Jian MING Jiaqi YUAN Bingxing LUO Junling WENG Juntao YAN Yingyao CHEN Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China β-thalassemia epidemiological burden disease burden health service utilization |
| title | Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China |
| title_full | Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China |
| title_fullStr | Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China |
| title_full_unstemmed | Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China |
| title_short | Progress in researches on disease burden and health service utilization of beta-thalassemia patients in China |
| title_sort | progress in researches on disease burden and health service utilization of beta thalassemia patients in china |
| topic | β-thalassemia epidemiological burden disease burden health service utilization |
| url | https://www.zgggws.com/article/doi/10.11847/zgggws1141960 |
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