“Systems seem to get in the way”: a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease
Abstract Background The well-being of informal caregivers of people living with chronic kidney disease is influenced by their experiences with support, however, few studies have focused on exploring these experiences. This study aimed to explore informal caregivers’ experiences accessing and receivi...
| Published in: | BMC Nephrology |
|---|---|
| Main Authors: | Chelsea Coumoundouros, Paul Farrand, Robbert Sanderman, Louise von Essen, Joanne Woodford |
| Format: | Article |
| Language: | English |
| Published: |
BMC
2024-01-01
|
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12882-023-03444-3 |
Similar Items
Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
by: Chelsea Coumoundouros, et al.
Published: (2023-01-01)
by: Chelsea Coumoundouros, et al.
Published: (2023-01-01)
The Unmet Needs of the Family Caregivers of Patients with Cancer Visiting a Referral Hospital in Iran
by: Shima Ashrafian, et al.
Published: (2018-01-01)
by: Shima Ashrafian, et al.
Published: (2018-01-01)
Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
by: Robbert Sanderman, et al.
Published: (2020-06-01)
by: Robbert Sanderman, et al.
Published: (2020-06-01)
Efficacy of a telephone outcall program to reduce caregiver burden among caregivers of cancer patients [PROTECT]: a randomised controlled trial
by: Leila Heckel, et al.
Published: (2018-01-01)
by: Leila Heckel, et al.
Published: (2018-01-01)
Exploring the unmet needs of family caregivers of cancer patients in Southwest Nigeria
by: P.O. Amoo, et al.
Published: (2025-01-01)
by: P.O. Amoo, et al.
Published: (2025-01-01)
Development of a brief screening measure of unmet supportive care needs (SCNS-P&C-6) in caregivers of people with high-grade glioma
by: Jill Chen, et al.
Published: (2025-01-01)
by: Jill Chen, et al.
Published: (2025-01-01)
Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
by: Chelsea Coumoundouros, et al.
Published: (2023-11-01)
by: Chelsea Coumoundouros, et al.
Published: (2023-11-01)
A Qualitative Investigation into the Determinants of Unfulfilled Needs in Caregivers of Patients with Phenylketonuria
by: Zheng YJ, et al.
Published: (2024-11-01)
by: Zheng YJ, et al.
Published: (2024-11-01)
Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis
by: Chelsea Coumoundouros, et al.
Published: (2022-11-01)
by: Chelsea Coumoundouros, et al.
Published: (2022-11-01)
Integrative review of the supportive care needs of Arab people affected by cancer
by: Ibrahim Alananzeh, et al.
Published: (2016-01-01)
by: Ibrahim Alananzeh, et al.
Published: (2016-01-01)
Gender differences in caregiver attitudes and unmet needs for activities of daily living (ADL) assistance among older adults with disabilities
by: Selin Woo, et al.
Published: (2023-10-01)
by: Selin Woo, et al.
Published: (2023-10-01)
A Protocol for a Systematic Review of Qualitative Studies Exploring the Perception of Unmet Needs by Informal Caregivers of Older People in Portugal
by: Rita Lopes da Silva, et al.
Published: (2024-11-01)
by: Rita Lopes da Silva, et al.
Published: (2024-11-01)
Psychological Needs and Problems of Family Caregivers of Older Adults: A Thematic Synthesis Study
by: Mojtaba Abbasi Asl, et al.
Published: (2025-10-01)
by: Mojtaba Abbasi Asl, et al.
Published: (2025-10-01)
The Impact of In‐Hospital Disease Modifying Treatments on Mental and Physical Burden in Caregiver of Patients With MS
by: Giuseppe Schirò, et al.
Published: (2025-05-01)
by: Giuseppe Schirò, et al.
Published: (2025-05-01)
Beyond the face: multidimensional care challenges and unmet needs in Hemifacial Microsomia families
by: Yan Huang, et al.
Published: (2025-08-01)
by: Yan Huang, et al.
Published: (2025-08-01)
Informing Dementia Support Programs That Serve Low-Income, Multilingual Communities in a Safety Net Health System: Use of Focus Groups to Identify Specific Needs
by: Andrew Pak, et al.
Published: (2024-03-01)
by: Andrew Pak, et al.
Published: (2024-03-01)
Understanding the Impact of Non-Dystrophic Myotonia on Patients and Caregivers: Results from a Burden of Disease Healthcare Survey
by: Jordi Diaz-Manera, et al.
Published: (2021-06-01)
by: Jordi Diaz-Manera, et al.
Published: (2021-06-01)
Perceived needs of caregivers of stroke patients’ receiving out-patient physiotherapy treatment in Lusaka, Zambia
by: O. Khondowe, et al.
Published: (2007-01-01)
by: O. Khondowe, et al.
Published: (2007-01-01)
Satisfaction with local healthcare services and medical need among hypertensive patients: a nationwide study
by: Woorim Kim, et al.
Published: (2024-03-01)
by: Woorim Kim, et al.
Published: (2024-03-01)
Behavioral Changes In Contraceptive Use Among Women Of Reproductive Age With Unmet Needs Following Family Planning Counseling
by: Ida Ayu Desy Ulandari, et al.
Published: (2024-12-01)
by: Ida Ayu Desy Ulandari, et al.
Published: (2024-12-01)
Contraceptive Utilization and Unmet Need for Contraception Among Women Undergoing Treatment for Tuberculosis in Addis Ababa, Ethiopia: a Cross-Sectional Study
by: Solomon S, et al.
Published: (2022-04-01)
by: Solomon S, et al.
Published: (2022-04-01)
Low Prevalence of Use of Allied Health and Community Services for Patients with Cirrhosis in Australia: A Need for Greater Engagement
by: Powell EE, et al.
Published: (2023-04-01)
by: Powell EE, et al.
Published: (2023-04-01)
Unmet dental care needs and reported reasons: a comparison between adults with and without disabilities
by: Huabin Luo, et al.
Published: (2025-10-01)
by: Huabin Luo, et al.
Published: (2025-10-01)
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others
by: Potemkowski A, et al.
Published: (2017-07-01)
by: Potemkowski A, et al.
Published: (2017-07-01)
Psychometric properties of the 45-item supportive care needs survey—partners and caregivers - Dutch (SCNS-P&C45-D) in partners of patients with breast cancer
by: Mark J. A. Rietveld, et al.
Published: (2019-01-01)
by: Mark J. A. Rietveld, et al.
Published: (2019-01-01)
Preventing post-discharge suicides in psychiatric patients: insights from patients, lay healthcare supporters, and mental health professionals—a qualitative analysis
by: Tiantian Fu, et al.
Published: (2024-01-01)
by: Tiantian Fu, et al.
Published: (2024-01-01)
Participation in Decision Making and Use of Contraception (Modern or Traditional) and Unmet Need in Rural Urban of Yogyakarta
by: Wiwik Puji Mulyani, et al.
Published: (2024-08-01)
by: Wiwik Puji Mulyani, et al.
Published: (2024-08-01)
Unmet supportive care need and associated factors among cancer patients
by: Woinab Degu Mehari, et al.
Published: (2025-08-01)
by: Woinab Degu Mehari, et al.
Published: (2025-08-01)
IJCM_85A: Prevalence of unmet need for contraception among married women aged 15-49 years in urban and rural areas of Telangana.
by: Stefi M S, et al.
Published: (2024-04-01)
by: Stefi M S, et al.
Published: (2024-04-01)
IJCM_67A: Unmet need for family planning and the factors affecting it in rural area of Udupi district, Karnataka
by: Jay Ratna, et al.
Published: (2024-04-01)
by: Jay Ratna, et al.
Published: (2024-04-01)
UNMET NEED FOR HEALTHCARE AMONG PEOPLE WITH HYPERTENSION IN INDONESIA
by: Asmaripa Ainy, et al.
Published: (2022-11-01)
by: Asmaripa Ainy, et al.
Published: (2022-11-01)
Unmet Need for Family Planning in Indonesia and Its Associated Factors
by: Dewi Nuryana, et al.
Published: (2023-04-01)
by: Dewi Nuryana, et al.
Published: (2023-04-01)
Demographic, socioeconomic, and health correlates of unmet need for mental health treatment in the United States, 2002–16: evidence from the national surveys on drug use and health
by: Justin C. Yang, et al.
Published: (2019-08-01)
by: Justin C. Yang, et al.
Published: (2019-08-01)
ANALISIS UNMET NEED KB PADA WANITA PASANGAN USIA SUBUR (PUS) DI WILAYAH PESISIR PANTAI DESA BAGAN KECAMATAN PERCUT SEI TUAN KABUPATEN DELI SERDANG TAHUN 2019
by: Suci Nanda Resti, et al.
Published: (2019-07-01)
by: Suci Nanda Resti, et al.
Published: (2019-07-01)
Access to healthcare services and factors associated with unmet needs among migrants in Phuket Province, Thailand, 2023: a cross-sectional mixed-method study
by: Saruttaya Wongsuwanphon, et al.
Published: (2024-10-01)
by: Saruttaya Wongsuwanphon, et al.
Published: (2024-10-01)
Uncertainty and unmet needs in older high-risk blunt trauma survivors and their caregivers: a multi-centre mixed methods study
by: Ting Hway Wong, et al.
Published: (2026-04-01)
by: Ting Hway Wong, et al.
Published: (2026-04-01)
Development and validation of the caregiver needs and resources assessment
by: Kin-Kit Li, et al.
Published: (2023-03-01)
by: Kin-Kit Li, et al.
Published: (2023-03-01)
Factors Related to Perceived Needs of Primary Caregivers of Patients with Schizophrenia
by: Ling-Ling Yeh, et al.
Published: (2008-08-01)
by: Ling-Ling Yeh, et al.
Published: (2008-08-01)
Remaining Burden of Spinal Muscular Atrophy Among Treated Patients: A Survey of Patients and Caregivers
by: Julie A. Parsons, et al.
Published: (2025-10-01)
by: Julie A. Parsons, et al.
Published: (2025-10-01)
Caregiver burden, psychological well-being, and support needs among Swedish informal caregivers
by: Sonja Togmat Malki, et al.
Published: (2025-03-01)
by: Sonja Togmat Malki, et al.
Published: (2025-03-01)
Similar Items
-
Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey
by: Chelsea Coumoundouros, et al.
Published: (2023-01-01) -
The Unmet Needs of the Family Caregivers of Patients with Cancer Visiting a Referral Hospital in Iran
by: Shima Ashrafian, et al.
Published: (2018-01-01) -
Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis
by: Robbert Sanderman, et al.
Published: (2020-06-01) -
Efficacy of a telephone outcall program to reduce caregiver burden among caregivers of cancer patients [PROTECT]: a randomised controlled trial
by: Leila Heckel, et al.
Published: (2018-01-01) -
Exploring the unmet needs of family caregivers of cancer patients in Southwest Nigeria
by: P.O. Amoo, et al.
Published: (2025-01-01)
