The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model

As gene therapy for haemophilia is now licensed in Europe, and the hub and spoke approach is widely promoted for its delivery and follow-up, it is essential that people with haemophilia (PwH) who are eligible and opt to have this treatment are enabled to obtain the maximum benefit. Ensuring the path...

詳細記述

書誌詳細

出版年:	The Journal of Haemophilia Practice
主要な著者:	Noone Declan, Astermark Jan, O'Mahony Brian, Peyvandi Flora, Khair Kate, Pembroke Luke, Jenner Kathryn
フォーマット:	論文
言語:	英語
出版事項:	Sciendo 2023-01-01
主題:	haemophilia gene therapy hub and spoke care model patient-centred care decision making follow-up
オンライン･アクセス:	https://doi.org/10.2478/jhp-2022-0021