Involving patients in healthcare research is well documented but can it work in lab-based research?

• Published in: Research Involvement and Engagement
• Main Authors: Adele E. Connor, Claire Hughes, Lea Schäfer, Lorraine McNally, Deirdre O’ Raw, Katayoun Bahramian, Bridget Carr, Ingrid Halligan Dunne, Joanne Lysaght, Sharon A. O’ Toole, Jeremy C. Simpson, Antoinette S. Perry
• Format: Article
• Language: English
• Published: BMC 2023-10-01
• Subjects: PPI; Ovarian cancer; Precision medicine; Translational research
• Online Access: https://doi.org/10.1186/s40900-023-00500-y

Abstract Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project.