Evaluation of the nation-wide implementation of ALS home monitoring & coaching: an e-health innovation for personalized care for patients with motor neuron disease
Abstract Background To improve the care for patients with motor neuron disease an e-health innovation for continuous monitoring of disease progression and patients’ well-being (ALS H&C) was implemented in 10 multidisciplinary rehabilitation settings. The first aim was to evaluate the implementat...
| Published in: | BMC Health Services Research |
|---|---|
| Main Authors: | M. L. Dontje, E. Kruitwagen-van Reenen, E. van Wijk, E. Baars, J. M. A. Visser-Meily, A. Beelen, on behalf of the Study Group ALS Home monitoring & Coaching |
| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-11-01
|
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12913-022-08724-6 |
Similar Items
Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center
by: Emanuela Coriolano Fidelix, et al.
Published: (2023-05-01)
by: Emanuela Coriolano Fidelix, et al.
Published: (2023-05-01)
Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study
by: Remko M. van Eenennaam, et al.
Published: (2021-11-01)
by: Remko M. van Eenennaam, et al.
Published: (2021-11-01)
Telehealth-based exercise in amyotrophic lateral sclerosis
by: Virginia Kudritzki, et al.
Published: (2023-07-01)
by: Virginia Kudritzki, et al.
Published: (2023-07-01)
Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic
by: Giulia D’Alvano, et al.
Published: (2021-12-01)
by: Giulia D’Alvano, et al.
Published: (2021-12-01)
Clinical features of fatigue in amyotrophic lateral sclerosis
by: E. V. Pervushina, et al.
Published: (2025-04-01)
by: E. V. Pervushina, et al.
Published: (2025-04-01)
MRI data confirm the selective involvement of thalamic and amygdalar nuclei in amyotrophic lateral sclerosis and primary lateral sclerosis
by: Rangariroyashe H. Chipika, et al.
Published: (2020-10-01)
by: Rangariroyashe H. Chipika, et al.
Published: (2020-10-01)
Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach
by: Minoo Sharbafshaaer, et al.
Published: (2022-06-01)
by: Minoo Sharbafshaaer, et al.
Published: (2022-06-01)
Glycerophospholipids in ALS: insights into disease mechanisms and clinical implication
by: Thibaut Burg, et al.
Published: (2025-07-01)
by: Thibaut Burg, et al.
Published: (2025-07-01)
ALS-associated C21ORF2 variant disrupts DNA damage repair, mitochondrial metabolism, neuronal excitability and NEK1 levels in human motor neurons
by: Pavol Zelina, et al.
Published: (2024-09-01)
by: Pavol Zelina, et al.
Published: (2024-09-01)
Orofacial Apraxia in Motor Neuron Disease
by: Patrícia Pita Lobo, et al.
Published: (2013-03-01)
by: Patrícia Pita Lobo, et al.
Published: (2013-03-01)
Demographic characteristics of patients with motor neuron disease subject to conditions of large industrial city in West Siberia
by: A. V. Lebedev
Published: (2009-06-01)
by: A. V. Lebedev
Published: (2009-06-01)
Sensory Dysfunction in ALS and Other Motor Neuron Diseases: Clinical Relevance, Histopathology, Neurophysiology, and Insights from Neuroimaging
by: Jana Kleinerova, et al.
Published: (2025-02-01)
by: Jana Kleinerova, et al.
Published: (2025-02-01)
Motor neuron diseases in the University Hospital of Fortaleza (Northeastern Brazil): a clinico-demographic analysis of 87 cases
by: CARLOS M. DE CASTRO-COSTA, et al.
Published: (2000-12-01)
by: CARLOS M. DE CASTRO-COSTA, et al.
Published: (2000-12-01)
Amyotrophic Lateral Sclerosis and Autophagy: Dysfunction and Therapeutic Targeting
by: Azin Amin, et al.
Published: (2020-11-01)
by: Azin Amin, et al.
Published: (2020-11-01)
Emotional Processing and Experience in Amyotrophic Lateral Sclerosis: A Systematic and Critical Review
by: Laura Carelli, et al.
Published: (2021-10-01)
by: Laura Carelli, et al.
Published: (2021-10-01)
The Cell Autonomous and Non-Cell Autonomous Aspects of Neuronal Vulnerability and Resilience in Amyotrophic Lateral Sclerosis
by: Christoph Schweingruber, et al.
Published: (2022-08-01)
by: Christoph Schweingruber, et al.
Published: (2022-08-01)
Advances on the genetic mechanism of amyotrophic lateral sclerosis
by: ZHAO Qian⁃qian, et al.
Published: (2023-03-01)
by: ZHAO Qian⁃qian, et al.
Published: (2023-03-01)
Current update on the protective effect of epicatechin in neurodegenerative diseases
by: Riya Thapa, et al.
Published: (2022-06-01)
by: Riya Thapa, et al.
Published: (2022-06-01)
Identification of 17 highly expressed genes within mouse lumbar spinal cord anterior horn region from an in-situ hybridization atlas of 3430 genes: implications for motor neuron disease
by: Michael A. Meyer
Published: (2014-06-01)
by: Michael A. Meyer
Published: (2014-06-01)
Stem Cell Applications in Amyotrophic Lateral Sclerosis
by: H. Özden Şener, et al.
Published: (2009-09-01)
by: H. Özden Şener, et al.
Published: (2009-09-01)
Rare variant analyses validate known ALS genes in a multi-ethnic population and identifies ANTXR2 as a candidate in PLS
by: Tess D. Pottinger, et al.
Published: (2024-06-01)
by: Tess D. Pottinger, et al.
Published: (2024-06-01)
Developmental Expression of Mutant PFN1 in Motor Neurons Impacts Neuronal Growth and Motor Performance of Young and Adult Mice
by: Merryn Brettle, et al.
Published: (2019-09-01)
by: Merryn Brettle, et al.
Published: (2019-09-01)
Extracellular Vesicles in Amyotrophic Lateral Sclerosis
by: Gavin McCluskey, et al.
Published: (2022-12-01)
by: Gavin McCluskey, et al.
Published: (2022-12-01)
Far beyond the motor neuron: the role of glial cells in amyotrophic lateral sclerosis
by: Paulo Victor Sgobbi de Souza, et al.
by: Paulo Victor Sgobbi de Souza, et al.
Pathophysiology of ion channels in amyotrophic lateral sclerosis
by: Robin N. Stringer, et al.
Published: (2023-12-01)
by: Robin N. Stringer, et al.
Published: (2023-12-01)
Motor Neuron Disease: The Contribution of TAR-43 Gene in Amyotrophic Lateral Sclerosis
by: Gorky Guha
Published: (2023-08-01)
by: Gorky Guha
Published: (2023-08-01)
Molecular diagnostics of neurodegenerative disorders
by: Megha eAgrawal, et al.
Published: (2015-09-01)
by: Megha eAgrawal, et al.
Published: (2015-09-01)
Reliable monitoring of respiratory function with home spirometry in people living with amyotrophic lateral sclerosis
by: Julián Peller, et al.
Published: (2025-06-01)
by: Julián Peller, et al.
Published: (2025-06-01)
Imaging data reveal divergent longitudinal trajectories in PLS, ALS and poliomyelitis survivors: Group-level and single-subject traits
by: Marlene Tahedl, et al.
Published: (2021-12-01)
by: Marlene Tahedl, et al.
Published: (2021-12-01)
A Validated Model to Predict Severe Weight Loss in Amyotrophic Lateral Sclerosis
by: David G. Lester, et al.
Published: (2025-09-01)
by: David G. Lester, et al.
Published: (2025-09-01)
Amyotrophic Lateral Sclerosis: The Most Common And Lethal Form Of Motor Neuron Disease-a Case Report From Middle East
by: Waseem Mehmood Nizamani, et al.
Published: (2019-06-01)
by: Waseem Mehmood Nizamani, et al.
Published: (2019-06-01)
Allele-specific silencing of a dominant SETX mutation in familial amyotrophic lateral sclerosis type 4
by: Audrey Winkelsas, et al.
Published: (2025-07-01)
by: Audrey Winkelsas, et al.
Published: (2025-07-01)
Epidemiological and clinical factors impact on the benefit of riluzole in the survival rates of patients with ALS
by: Francis Meire Fávero, et al.
by: Francis Meire Fávero, et al.
Quality of life, disability, and clinical variables in amyotrophic lateral sclerosis
by: Mariana Asmar Alencar, et al.
Published: (2021-12-01)
by: Mariana Asmar Alencar, et al.
Published: (2021-12-01)
Edaravone: A new hope for patients with amyotrophic lateral sclerosis
by: Shivangi Garg, et al.
Published: (2019-01-01)
by: Shivangi Garg, et al.
Published: (2019-01-01)
Constipation in patients with motor neuron disease: A retrospective longitudinal study
by: Yuki Yamamoto, et al.
Published: (2024-03-01)
by: Yuki Yamamoto, et al.
Published: (2024-03-01)
An Intercellular Flow of Glutathione Regulated by Interleukin 6 Links Astrocytes and the Liver in the Pathophysiology of Amyotrophic Lateral Sclerosis
by: Rafael López-Blanch, et al.
Published: (2021-12-01)
by: Rafael López-Blanch, et al.
Published: (2021-12-01)
Mechanistic Insights of Mitochondrial Dysfunction in Amyotrophic Lateral Sclerosis: An Update on a Lasting Relationship
by: Niccolò Candelise, et al.
Published: (2022-03-01)
by: Niccolò Candelise, et al.
Published: (2022-03-01)
Timeline of hypoglossal motor neuron death and intrinsic tongue muscle denervation in high-copy number SOD1G93A mice
by: Matthew J. Fogarty, et al.
Published: (2024-07-01)
by: Matthew J. Fogarty, et al.
Published: (2024-07-01)
FUDNC1-dependent mitophagy ameliorate motor neuron death in an amyotrophic lateral sclerosis mouse model
by: Xia Guo, et al.
Published: (2024-07-01)
by: Xia Guo, et al.
Published: (2024-07-01)
Similar Items
-
Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center
by: Emanuela Coriolano Fidelix, et al.
Published: (2023-05-01) -
Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study
by: Remko M. van Eenennaam, et al.
Published: (2021-11-01) -
Telehealth-based exercise in amyotrophic lateral sclerosis
by: Virginia Kudritzki, et al.
Published: (2023-07-01) -
Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic
by: Giulia D’Alvano, et al.
Published: (2021-12-01) -
Clinical features of fatigue in amyotrophic lateral sclerosis
by: E. V. Pervushina, et al.
Published: (2025-04-01)
