Search Results - METADATA REGISTRY

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    Clinical Data Element Ontology for Unified Indexing and Retrieval of Data Elements across Multiple Metadata Registries by Senator Jeong, Hye Hyeon Kim, Yu Rang Park, Ju Han Kim

    Published in Healthcare Informatics Research (2014-10-01)
    “…ObjectivesClassification of data elements (DEs), which is used in clinical documents is challenging, even in across ISO/IEC 11179 compliant clinical metadata registries (MDRs) due to no existence of reliable standard for identifying DEs. …”
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    Medical researchers' perception of sharing of metadata from case report forms by Alexandra Meidt, Carolin Walter, Christoph U. Lehmann, Martin Dugas

    Published in Learning Health Systems (2025-01-01)
    “…The aim of our study was to investigate medical researchers' (MRs) willingness to share CRFs, to identify reasons for and against CRF sharing, and to determine if and under which conditions MRs might consider sharing CRF metadata via a public registry. Methods We examined CRF data sharing commitments for 1842 interventional trials registered on the German Clinical Trials Registry (DRKS) from January 1, 2020, to December 31, 2021. …”
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    Metadata GeoPortal: Advancing Map Data Management and Collaboration Across Sectors by S. Yalcin, M. T. Sert, B. Erkek, E. Ayyildiz

    “…To enhance coordination, minimize duplication of efforts, and optimize resource use, the Metadata GeoPortal (Map Information Bank) was developed. …”
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    Recommendations for the FAIRification of genomic track metadata [version 1; peer review: 2 approved] by Sveinung Gundersen, Sanjay Boddu, Salvador Capella-Gutierrez, Finn Drabløs, José M. Fernández, Radmila Kompova, Kieron Taylor, Dmytro Titov, Daniel Zerbino, Eivind Hovig

    Published in F1000Research (2021-04-01)
    “…Description of work: We propose to advance the application of FAIR data principles (Findable, Accessible, Interoperable, and Reusable) to produce searchable metadata for genomic tracks. Findability and Accessibility of metadata can then be ensured by a track search service that integrates globally identifiable metadata from various track hubs in the Track Hub Registry and other relevant repositories. …”
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    Python scripts for web scraping metadata from descriptions of the international scenario of research data repositories by Alexandre Ribas Semeler, Arthur Longoni Oliveira, Fabiana Andrade Pereira, Policarpo Matiquite

    Published in Encontros Bibli (2023-08-01)
    “…In this context, this study aims to conduct an exploratory and descriptive investigation of the international scenario of data repositories by monitoring the descriptive metadata of the international register of this type of repositories in the Registry of Research Data Repositories (re3data.org). …”
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    Thyroid Cancer and Tumor Collaborative Registry (TCCR) by Oleg Shats, Whitney Goldner, Jianmin Feng, Alexander Sherman, Russell B. Smith, Simon Sherman

    Published in Cancer Informatics (2016-01-01)
    “…A multicenter, web-based Thyroid Cancer and Tumor Collaborative Registry (TCCR, http://tccr.unmc.edu ) allows for the collection and management of various data on thyroid cancer (TC) and thyroid nodule (TN) patients. …”
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    Associations Between Smartphone Keystroke Metadata and Mental Health Symptoms in Adolescents: Findings From the Future Proofing Study by Taylor A Braund, Bridianne O’Dea, Debopriyo Bal, Kate Maston, Mark Larsen, Aliza Werner-Seidler, Gabriel Tillman, Helen Christensen

    Published in JMIR Mental Health (2023-05-01)
    “…ObjectiveIn a cross-sectional analysis of a large cohort, we tested whether various features of typing behavior derived from keystroke metadata were associated with mental health symptoms and whether these relationships differed between genders. …”
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    PATHS Data Resource: A population-based suite of linkable administrative records and metadata for population health research by Nathan Nickel, Marni Brownell, Dan Chateau, Alan Katz, Elaine Burland

    “…Many studies from a variety of researchers have utilized the PATHS metadata to conduct child health and development research, ensuring consistent variable operationalization. …”
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    Show Me The Data: The Pilot UK Research Data Registry by Alexander Ball, Kevin Ashley, Patrick McCann, Laura Molloy, Veerle Van den Eynden

    Published in International Journal of Digital Curation (2014-06-01)
    “…The UK Research Data (Metadata) Registry (UKRDR) pilot project is implementing a prototype registry for the UK’s research data assets, enabling the holdings of subject-based data centres and institutional data repositories alike to be searched from a single location. …”
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    Show Me The Data: The Pilot UK Research Data Registry by Alexander Ball, Kevin Ashley, Patrick McCann, Laura Molloy, Veerle Van den Eynden

    Published in International Journal of Digital Curation (2014-06-01)
    “…The UK Research Data (Metadata) Registry (UKRDR) pilot project is implementing a prototype registry for the UK’s research data assets, enabling the holdings of subject-based data centres and institutional data repositories alike to be searched from a single location. …”
    Get full text
    Article

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