The impact of 22q11.2 deletion syndrome on caregivers: assessing quality of life and burden
Abstract Background Raising a child with 22q11.2DS presents significant psychosocial and financial challenges for caregivers for various reasons. Research on the quality of life (QoL) of caregivers for patients with rare diseases highlights significant challenges, with caregivers reporting lower hea...
| 出版年: | Orphanet Journal of Rare Diseases |
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| 主要な著者: | , |
| フォーマット: | 論文 |
| 言語: | 英語 |
| 出版事項: |
BMC
2025-06-01
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| 主題: | |
| オンライン･アクセス: | https://doi.org/10.1186/s13023-025-03790-5 |