Evaluation of an educational conference for persons affected by hereditary frontotemporal degeneration and amyotrophic lateral sclerosis

Objective: There are limited studies exploring the support and education needs of individuals at-risk for or diagnosed with hereditary frontotemporal degeneration (FTD) and/or amyotrophic lateral sclerosis (ALS). This study evaluated a novel conference for this population to assess conference effica...

وصف كامل

التفاصيل البيبلوغرافية

الحاوية / القاعدة:	PEC Innovation
المؤلفون الرئيسيون:	Laynie Dratch, Weiyi Mu, Elisabeth McCarty Wood, Brianna Morgan, Lauren Massimo, Cynthia Clyburn, Tanya Bardakjian, Murray Grossman, David J. Irwin, Katheryn A.Q. Cousins
التنسيق:	مقال
اللغة:	الإنجليزية
منشور في:	Elsevier 2023-12-01
الموضوعات:	Community Education Genetic counseling Frontotemporal degeneration (FTD) Amyotrophic lateral sclerosis (ALS) At-risk
الوصول للمادة أونلاين:	http://www.sciencedirect.com/science/article/pii/S2772628222000930