Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

Abstract Background Pain is common in the genetic skin fragility disorder epidermolysis bullosa (EB), from skin and mucosal injury and inflammation as well as extra-mucocutaneous sites. Individuals living with EB have identified pain as a priority for better treatments. Objectives The Prospective EB...

وصف كامل

التفاصيل البيبلوغرافية
الحاوية / القاعدة:Orphanet Journal of Rare Diseases
المؤلفون الرئيسيون: Eunice Jeffs, Elizabeth I. Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera, Susan J. Robertson, John A. McGrath, Yanzhong Wang, Anna E. Martinez, Jemima E. Mellerio
التنسيق: مقال
اللغة:الإنجليزية
منشور في: BMC 2024-10-01
الموضوعات:
Epidermolysis bullosa
Pain
Natural history
Quality of life
Disease severity
الوصول للمادة أونلاين:https://doi.org/10.1186/s13023-024-03349-w

الانترنت

https://doi.org/10.1186/s13023-024-03349-w

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