Patient-reported outcomes and daily activity assessed with a digital wearable device in patients with paroxysmal nocturnal hemoglobinuria treated with ravulizumab: REVEAL, a prospective, observational study

Abstract Background Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, chronic blood disorder. Symptoms such as fatigue can have a substantial impact on patients’ physical activity levels, sleep, quality of life, and work productivity. Ravulizumab treatment can reduce thrombosis risk, improve surv...

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發表在:	Health and Quality of Life Outcomes
Main Authors:	Elizabeth A. Griffiths, Jae S. Min, Wei-Nchih Lee, Jeffrey C. Yu, Yogesh Patel, Karl-Johan Myren, David Dingli
格式:	Article
語言:	英语
出版:	BMC 2024-08-01
主題:	Paroxysmal nocturnal hemoglobinuria Health-related quality of life Fatigue Patient-reported outcomes
在線閱讀:	https://doi.org/10.1186/s12955-024-02279-2