A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks

The ability to use clinical and research data at scale is central to hopes for data-driven medicine. However, in using such data researchers often encounter hurdles–both technical, such as differing data security requirements, and social, such as the terms of informed consent, legal requirements and...

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Bibliographic Details

Published in:	Frontiers in Big Data
Main Authors:	Richard Milne, Mark Sheehan, Brendan Barnes, Janek Kapper, Nathan Lea, James N'Dow, Gurparkash Singh, Amelia Martín-Uranga, Nigel Hughes
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2022-09-01
Subjects:	consent data trust federated data access distributed data access ethics
Online Access:	https://www.frontiersin.org/articles/10.3389/fdata.2022.945739/full