Attitudes of Patients with Adrenoleukodystrophy towards Sex-Specific Newborn Screening

Newborn screening (NBS) for X-linked adrenoleukodystrophy (ALD) can identify affected individuals before the onset of life-threatening manifestations. Some countries have decided to only screen boys (sex-specific screening). This study investigates the attitudes of individuals with ALD towards sex-s...

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Bibliographic Details

Published in:	International Journal of Neonatal Screening
Main Authors:	Hemmo A. F. Yska, Lidewij Henneman, Rinse W. Barendsen, Marc Engelen, Stephan Kemp
Format:	Article
Language:	English
Published:	MDPI AG 2023-09-01
Subjects:	adrenoleukodystrophy newborn screening sex-specific screening survey Wilson and Jungner
Online Access:	https://www.mdpi.com/2409-515X/9/3/51