Returning raw genomic data to research participants in a pediatric cancer precision medicine trial

Abstract In pediatric cancer precision medicine clinical trials settings, parents proactively seeking treatment and answers to causation may request return of their child’s raw data and/or biospecimen. To satisfy such requests, the ZERO Childhood Cancer Program required a guidance document. Literatu...

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Bibliographic Details

Published in:	npj Genomic Medicine
Main Authors:	Kristine Barlow-Stewart, Eliza Courtney, Mark Cowley, Camron Ebzery, Noemi Fuentes Bolanos, Andrew J. Gifford, Hazel Harden, Sarah Josephi-Taylor, Rishi S. Kotecha, Marion K. Mateos, Mitali Manzur, Chelsea Mayoh, Di Milnes, Jane Nielsen, Matthew O’Connor, Bhavna Padhye, Catherine Pitman, Elizabeth Pitman, Mark Pinese, Catherine Speechly, Ashleigh Sullivan, Toby Trahair, Katherine Tucker, Vanessa Tyrrell, Meera Warby, Andrew Wood, David S. Ziegler, Carolyn Johnston
Format:	Article
Language:	English
Published:	Nature Portfolio 2025-02-01
Online Access:	https://doi.org/10.1038/s41525-025-00470-y