Resilience in patients and family caregivers living with congenital disorders of glycosylation (CDG): a quantitative study using the brief resilience coping scale (BRCS)

Abstract Background Patients and family caregivers living with Congenital Disorders of Glycosylation (CDG) experience a heavy burden, which can impact their resiliency and quality of life. The study’s purpose was to measure the resilience levels of patients and family caregivers living with CDG usin...

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Bibliographic Details

Published in:	Orphanet Journal of Rare Diseases
Main Authors:	Joana Poejo, Ana Isabel Gomes, Pedro Granjo, Vanessa dos Reis Ferreira
Format:	Article
Language:	English
Published:	BMC 2024-03-01
Subjects:	Resilience Congenital disorders of glycosylation (CDG) Rare diseases Brief resilience coping scale (BRCS) Mental health
Online Access:	https://doi.org/10.1186/s13023-024-03043-x