Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...

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書誌詳細

出版年:	Molecular Genetics and Metabolism Reports
主要な著者:	Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai
フォーマット:	論文
言語:	英語
出版事項:	Elsevier 2023-09-01
主題:	Caregiver burden Gaucher disease Japan Caregiver Impact Questionnaire Neuronopathic Gaucher disease Zarit Caregiver Burden Interview
オンライン･アクセス:	http://www.sciencedirect.com/science/article/pii/S221442692300040X