Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study
Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...
| 出版年: | Molecular Genetics and Metabolism Reports |
|---|---|
| 主要な著者: | Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai |
| フォーマット: | 論文 |
| 言語: | 英語 |
| 出版事項: |
Elsevier
2023-09-01
|
| 主題: | |
| オンライン･アクセス: | http://www.sciencedirect.com/science/article/pii/S221442692300040X |
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