The RaDiCo information system for rare disease cohorts

Abstract Background Rare diseases (RDs) clinical care and research face several challenges. Patients are dispersed over large geographic areas, their number per disease is limited, just like the number of researchers involved. Current databases as well as biological collections, when existing, are g...

Full description

Bibliographic Details
Published in:Orphanet Journal of Rare Diseases
Main Authors: Paul Landais, Sonia Gueguen, Annick Clement, Serge Amselem, for the RaDiCo Program
Format: Article
Language:English
Published: BMC 2025-04-01
Subjects:
Online Access:https://doi.org/10.1186/s13023-025-03629-z