Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach

Background: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease that affects the quality of life (QoL) of HD gene expansion carriers (HDGECs) and their partners. Although HD expertise centers have been emerging across Europe, there are still some important barriers to c...

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出版年:	Frontiers in Neurology
主要な著者:	Pearl J. C. van Lonkhuizen, Niko J. H. Vegt, Eline Meijer, Erik van Duijn, Susanne T. de Bot, Jiří Klempíř, Wiebke Frank, G. Bernhard Landwehrmeyer, Alzbeta Mühlbäck, Jennifer Hoblyn, Ferdinando Squitieri, Peter Foley, Niels H. Chavannes, Anne-Wil Heemskerk
フォーマット:	論文
言語:	英語
出版事項:	Frontiers Media S.A. 2021-09-01
主題:	Huntington disease neurodegenerative diseases telemedicine eHealth user-centered design quality of life
オンライン･アクセス:	https://www.frontiersin.org/articles/10.3389/fneur.2021.719460/full