Examining the Real‐Life Journey of Individuals and Families Affected by Single‐Ventricle Congenital Heart Disease

Background The lifetime journey of patients with single‐ventricle congenital heart disease is characterized by long‐term challenges that are incompletely understood and still unfolding. Health care redesign requires a thorough understanding of this journey to create and implement solutions that impr...

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Bibliographic Details

Published in:	Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease
Main Authors:	Carlos M. Mery, Andrew Well, Kate Taylor, Kathleen Carberry, José Colucci, Christopher Ulack, Adam Zeiner, Michelle Mizrahi, Eileen Stewart, Christine Dillingham, Taylor Cook, Arotin Hartounian, Elizabeth McCullum, Jeremy T. Affolter, Heather Van Diest, Alexandra Lamari‐Fisher, Stacey Chang, Scott Wallace, Elizabeth Teisberg, Charles D. Fraser
Format:	Article
Language:	English
Published:	Wiley 2023-03-01
Subjects:	human centric design lifelong outcomes qualitative research single‐ventricle congenital heart disease value‐based health care
Online Access:	https://www.ahajournals.org/doi/10.1161/JAHA.122.027556