A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

Objective: To explore the impact of plexiform neurofibromas on the lives of adults with neurofibromatosis type 1. Background: Neurofibromatosis type 1 is a complex neurogenetic syndrome that affects many aspects of health and functioning. A common manifestation of neurofibromatosis type 1 is plexifo...

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Bibliographic Details

Published in:	SAGE Open Medicine
Main Authors:	Alice Heaney, Jeanette Wilburn, Shannon Langmead, Jaishri Blakeley, Susan Huson, Carly Jim, Stephen P McKenna
Format:	Article
Language:	English
Published:	SAGE Publishing 2019-02-01
Online Access:	https://doi.org/10.1177/2050312119829680