Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
Abstract Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for those with more prevalent diseases. The EuroSoftCalc.Net COST Action...
| الحاوية / القاعدة: | Orphanet Journal of Rare Diseases |
|---|---|
| المؤلفون الرئيسيون: | , , , , , |
| التنسيق: | مقال |
| اللغة: | الإنجليزية |
| منشور في: |
BMC
2021-02-01
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| الوصول للمادة أونلاين: | https://doi.org/10.1186/s13023-021-01703-w |