Health-related quality of life and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China

Abstract Background Paroxysmal nocturnal hemoglobinuria (PNH) is a rare blood disorder, leading to various complications and impairments in patients’ health-related quality of life (HRQOL). Limited research has been conducted to evaluate the HRQOL of Chinese patients with PNH. Understanding the HRQO...

Full description

Bibliographic Details

Published in:	Orphanet Journal of Rare Diseases
Main Authors:	Huaxin Yu, Shengnan Duan, Pei Wang, Rong Fu, Zixuan Lv, Yuchi Yu, Pu Miao, Junwei Shi, Niekun Zhuang, Huiying Hu, Ni Yuan, Sijia Che
Format:	Article
Language:	English
Published:	BMC 2024-05-01
Subjects:	Paroxysmal nocturnal hemoglobinuria Health-related quality of life (HRQOL) EQ-5D-5L Influencing factors China
Online Access:	https://doi.org/10.1186/s13023-024-03178-x