A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice

Abstract Background Hypermobile Ehlers-Danlos syndrome (hEDS) is characterized by joint and skin laxity, and often accompanied by chronic pain, dysautonomia, increased distress and, functional limitations. The journey to accurate diagnosis is often prolonged due to unclear etiology of symptoms. This...

Full description

Bibliographic Details

Published in:	Pediatric Rheumatology Online Journal
Main Authors:	Estée C.H. Feldman, Kendra J. Homan, Sara E. Williams, Tracy V. Ting, Kenneth R. Goldschneider, Susmita Kashikar-Zuck
Format:	Article
Language:	English
Published:	BMC 2023-10-01
Subjects:	Hypermobility Ehlers-Danlos syndrome Illness uncertainty Pain Narrative review
Online Access:	https://doi.org/10.1186/s12969-023-00908-6