A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice
Abstract Background Hypermobile Ehlers-Danlos syndrome (hEDS) is characterized by joint and skin laxity, and often accompanied by chronic pain, dysautonomia, increased distress and, functional limitations. The journey to accurate diagnosis is often prolonged due to unclear etiology of symptoms. This...
| Published in: | Pediatric Rheumatology Online Journal |
|---|---|
| Main Authors: | Estée C.H. Feldman, Kendra J. Homan, Sara E. Williams, Tracy V. Ting, Kenneth R. Goldschneider, Susmita Kashikar-Zuck |
| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-10-01
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| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12969-023-00908-6 |
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