Development and validation of LUPIN: a patient-centred self-administered tool to assess disease activity and patient-reported outcomes in systemic lupus erythematosus

Objective To develop and validate LUPIN, a self-administered, patient-centred questionnaire codesigned by patients and lupus specialists to assess disease activity and patient-reported outcomes in systemic lupus erythematosus (SLE).Methods LUPIN and the SF-36 questionnaires were distributed across 3...

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Bibliographic Details

Published in:	RMD Open
Main Authors:	Zahir Amoura, Thierry Martin, Anne-Sophie Korganow, Marianne Rivière, Xavier Mariette, Christophe Richez, Jacques-Eric Gottenberg, Laurent Perard, Patricia Senet, Denis Wahl, Jean Sibilia, Christian Agard, Marc André, Perrine Smets, François Chasset, Marc Scherlinger, Elisabeth Diot, Mickaël Martin, Gilles Blaison, Nadine Magy-Bertrand, Baptiste Hervier, Daniel Wendling, Jean-François Viallard, Arnaud Hot, Mathieu Puyade, Amélie Servettaz, Roland Jaussaud, Christophe Deligny, Audrey Gorse, Jean-François Kleinmann, Pauline Orquevaux, Pascal Roblot, Ludivine Lebourg, Estelle Jean, Thomas Moulinet, Loïc Raffray, Frederic Renou, Sarah Permal, Antonin Folliasson, Raphaëlle Rybak, Sabine Malivoir, Clara Baverez, Nicolas Baillet, Julien Campagne, Nicolas Girszyn, Cécile Fermont, Emmanuelle David, Benjamin Dervieux, Estibaliz Llazaro, Irène MACHELART, Julie Le Scanff, Ludovic Ttrefond, Ronan Pasquer
Format:	Article
Language:	English
Published:	BMJ Publishing Group 2025-09-01
Online Access:	https://rmdopen.bmj.com/content/11/3/e006106.full