Exploring the path for patient organizations to participate in medical security for rare diseases

The participation of patient organizations in the construction of medical security systems for rare diseases is an important proposition in the theory of welfare pluralism, which indicates that individualized services and diversified connections of patient organizations can fully meet the multiple m...

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Bibliographic Details

Published in:	Frontiers in Public Health
Main Authors:	Tian-tian Dong, Dong-yi Xie
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2025-04-01
Subjects:	rare disease patient organization “welfare pluralism” theory development path public policy
Online Access:	https://www.frontiersin.org/articles/10.3389/fpubh.2025.1484286/full