Measuring the impact of rare diseases in Tasmania, Australia

Abstract Background An ongoing challenge with rare diseases is limited data and, consequently, limited knowledge about the collective prevalence and impact of these conditions on individuals, families, and the health system, particularly in rural and regional areas. Using existing datasets, this pro...

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Bibliographic Details

Published in:	Orphanet Journal of Rare Diseases
Main Authors:	Philippa Scanlon, Garry Ridler, Genevieve Say, Miranda Kellett, Jac Charlesworth, Amanda Neil, Joanne L. Dickinson, Kathryn Burdon, Matthew Jose, Mathew Wallis
Format:	Article
Language:	English
Published:	BMC 2024-10-01
Subjects:	Rare diseases Data linkage analysis Inpatient admissions Costs
Online Access:	https://doi.org/10.1186/s13023-024-03343-2