Identifying children with Cystic Fibrosis in population-scale routinely collected data in Wales

Introduction The challenges in identifying a cohort of people with a rare condition can be addressed by routinely collected, population-scale electronic health record (eHR) data, which provide large volumes of data at a national level. This paper describes the challenges of accurately identifying...

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Bibliographic Details

Published in:	International Journal of Population Data Science
Main Authors:	Rowena Griffiths, Daniela K Schlüter, Ashley Akbari, Rebecca Cosgriff, David Tucker, David Taylor-Robinson
Format:	Article
Language:	English
Published:	Swansea University 2020-08-01
Subjects:	Data Linkage Population data
Online Access:	https://ijpds.org/article/view/1346