Health care supply in patients with Ehlers-Danlos syndromes and generalized hypermobility spectrum disorder: a German perspective

Abstract Background Diagnosing Ehlers-Danlos syndromes (EDS) and EDS-related “hypermobility spectrum disorder” (HSD) is challenging and cutaneous manifestations often serve as indicators of these rare connective tissue disorders. Only limited data exist on the healthcare of EDS/HSD in Germany as spe...

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Bibliographic Details

Published in:	Orphanet Journal of Rare Diseases
Main Authors:	Jonas Rauterberg, Marie Hock, Nikolaus Kernich, Arim Shukri, Henning Klapproth, Vanessa Löw, Michaela Henning, Iliana Tantcheva-Poór
Format:	Article
Language:	English
Published:	BMC 2025-08-01
Subjects:	Hereditary connective skin disorders Genodermatoses Ehlers-danlos syndromes Hypermobility spectrum disorder Generalized hypermobility Health care supply
Online Access:	https://doi.org/10.1186/s13023-025-03937-4