Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research
Background: Community and patient engagement in the healthcare system and biomedical research are prerequisites for eliminating health disparities. We conducted a “listening tour” to enhance our understanding of multilevel factors associated with community trust. Methods: Using c...
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doaj-01aee1924df84c338568122495567c862020-11-25T01:32:42ZengMDPI AGInternational Journal of Environmental Research and Public Health1660-46012019-09-011618328010.3390/ijerph16183280ijerph16183280Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and ResearchMonica Webb Hooper0Charlene Mitchell1Vanessa J. Marshall2Chesley Cheatham3Kristina Austin4Kimberly Sanders5Smitha Krishnamurthi6Lena L. Grafton7Case Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USACase Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USACase Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USACase Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USAThe Gathering Place, Beachwood, OH 44122, USACase Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USACase Comprehensive Cancer Center, Case Western Reserve University, Cleveland, OH 44106, USANEOMED-CSU Partnership for Urban Health, Cleveland State University, Cleveland, OH 44115, USABackground: Community and patient engagement in the healthcare system and biomedical research are prerequisites for eliminating health disparities. We conducted a “listening tour” to enhance our understanding of multilevel factors associated with community trust. Methods: Using community-based participatory research (CBPR) methods, we conducted a phenomenological qualitative study. “Town-hall” style discussions were held at nine sites across an urban, Midwestern city. We recruited adults (N = 130) via community networks, social media, flyers, and word-of-mouth. Demographic assessments were self-administered and listening tour sessions were conducted by trained moderators. Themes were framed within the social ecological model (SEM; intrapersonal, interpersonal, institutional, community, and policy levels). Results: Participants were mostly female (68%), African American (80%), had health coverage (97%) and were diagnosed with a chronic health condition (71%). The overarching theme was sociodemographic differences in distrust, such that African Americans and deaf/hearing impaired participants perceived disparities in healthcare, a lower quality of care, and skepticism about biomedical research, relative to Whites. Conclusions: The depth of distrust for healthcare providers, systems, and researchers in underserved communities remains strong and complex. Findings highlight the need to understand the lived experiences of community members, and how distrust is maintained. Multilevel interventions to increase trust and the accrual of underrepresented populations into clinical trials are needed.https://www.mdpi.com/1660-4601/16/18/3280community-based participatory research (CBPR)community engagementcommunity listening tourdistrusthealthcarehealth disparitiescancer |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Monica Webb Hooper Charlene Mitchell Vanessa J. Marshall Chesley Cheatham Kristina Austin Kimberly Sanders Smitha Krishnamurthi Lena L. Grafton |
spellingShingle |
Monica Webb Hooper Charlene Mitchell Vanessa J. Marshall Chesley Cheatham Kristina Austin Kimberly Sanders Smitha Krishnamurthi Lena L. Grafton Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research International Journal of Environmental Research and Public Health community-based participatory research (CBPR) community engagement community listening tour distrust healthcare health disparities cancer |
author_facet |
Monica Webb Hooper Charlene Mitchell Vanessa J. Marshall Chesley Cheatham Kristina Austin Kimberly Sanders Smitha Krishnamurthi Lena L. Grafton |
author_sort |
Monica Webb Hooper |
title |
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research |
title_short |
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research |
title_full |
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research |
title_fullStr |
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research |
title_full_unstemmed |
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research |
title_sort |
understanding multilevel factors related to urban community trust in healthcare and research |
publisher |
MDPI AG |
series |
International Journal of Environmental Research and Public Health |
issn |
1660-4601 |
publishDate |
2019-09-01 |
description |
Background: Community and patient engagement in the healthcare system and biomedical research are prerequisites for eliminating health disparities. We conducted a “listening tour” to enhance our understanding of multilevel factors associated with community trust. Methods: Using community-based participatory research (CBPR) methods, we conducted a phenomenological qualitative study. “Town-hall” style discussions were held at nine sites across an urban, Midwestern city. We recruited adults (N = 130) via community networks, social media, flyers, and word-of-mouth. Demographic assessments were self-administered and listening tour sessions were conducted by trained moderators. Themes were framed within the social ecological model (SEM; intrapersonal, interpersonal, institutional, community, and policy levels). Results: Participants were mostly female (68%), African American (80%), had health coverage (97%) and were diagnosed with a chronic health condition (71%). The overarching theme was sociodemographic differences in distrust, such that African Americans and deaf/hearing impaired participants perceived disparities in healthcare, a lower quality of care, and skepticism about biomedical research, relative to Whites. Conclusions: The depth of distrust for healthcare providers, systems, and researchers in underserved communities remains strong and complex. Findings highlight the need to understand the lived experiences of community members, and how distrust is maintained. Multilevel interventions to increase trust and the accrual of underrepresented populations into clinical trials are needed. |
topic |
community-based participatory research (CBPR) community engagement community listening tour distrust healthcare health disparities cancer |
url |
https://www.mdpi.com/1660-4601/16/18/3280 |
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