Ethical concerns on sharing genomic data including patients’ family members

Ethical concerns on sharing genomic data including patients’ family members

Abstract Background Platforms for sharing genomic and phenotype data have been developed to promote genomic research, while maximizing the utility of existing datasets and minimizing the burden on participants. The value of genomic analysis of trios or family members has increased, especially in rar...

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Bibliographic Details
Main Authors: Kyoko Takashima, Yuichi Maru, Seiichi Mori, Hiroyuki Mano, Tetsuo Noda, Kaori Muto
Format: Article
Language:English
Published: BMC 2018-06-01
Series:BMC Medical Ethics
Subjects:
Genomic research
Data sharing
Human research protection
Patients and family members
ELSI
Online Access:http://link.springer.com/article/10.1186/s12910-018-0310-5

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