Designing the colorectal cancer core dataset in Iran

• Main Authors: Sara Dorri, Alireza Atashi, Safoura Dorri, Ebrahim Abbasi, Mohsen Alijani-Zamani, Najme Nazeri
• Format: Article
• Language: fas
• Published: Tehran University of Medical Sciences 2017-01-01
• Series: Tehran University Medical Journal
• Subjects: cancer registry; colorectal cancer; core data set; medical informatics; standards
• Online Access: http://tumj.tums.ac.ir/browse.php?a_code=A-10-25-5524&slc_lang=en&sid=1

Background: There is no need to explain the importance of collection, recording and analyzing the information of disease in any health organization. In this regard, systematic design of standard data sets can be helpful to record uniform and consistent information. It can create interoperability between health care systems. The main purpose of this study was design the core dataset to record colorectal cancer information in Iran. Methods: For the design of the colorectal cancer core data set, a combination of literature review and expert consensus were used. In the first phase, the draft of the data set was designed based on colorectal cancer literature review and comparative studies. Then, in the second phase, this data set was evaluated by experts from different discipline such as medical informatics, oncology and surgery. Their comments and opinion were taken. In the third phase refined data set, was evaluated again by experts and eventually data set was proposed. Results: In first phase, based on the literature review, a draft set of 85 data elements was designed. In the second phase this data set was evaluated by experts and supplementary information was offered by professionals in subgroups especially in treatment part. In this phase the number of elements totally were arrived to 93 numbers. In the third phase, evaluation was conducted by experts and finally this dataset was designed in five main parts including: demographic information, diagnostic information, treatment information, clinical status assessment information, and clinical trial information. Conclusion: In this study the comprehensive core data set of colorectal cancer was designed. This dataset in the field of collecting colorectal cancer information can be useful through facilitating exchange of health information. Designing such data set for similar disease can help providers to collect standard data from patients and can accelerate retrieval from storage systems.