Quality of life of parents and siblings of children with cochlear implants
Objectives: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). Design: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and suppo...
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doaj-066126dab5d74d78b17abac58c8d7ea12020-11-24T21:53:30ZengElsevierJournal of Otology1672-29302019-03-011411721Quality of life of parents and siblings of children with cochlear implantsCila Umat0Nor Haniza Abdul Wahat1Sakinah Che Ross2Bee See Goh3Audiology Program, Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia (UKM), Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia; Corresponding author.Audiology Program, Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia (UKM), Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, MalaysiaAudiology Program, Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia (UKM), Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, MalaysiaDepartment of Otorhinolaryngology-Head & Neck Surgery, Faculty of Medicine, Universiti Kebangsaan Malaysia Medical Centre, Jalan Yaacob Latif, Bandar Tun Razak, 56000, Kuala Lumpur, MalaysiaObjectives: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). Design: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL -- and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. Setting: The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. Participants: A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. Main outcome measures: The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. Results: There were significant correlations between the overall QoL score and each of the test domains for the parents' group (p < 0.01). For the siblings' group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents' QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). Conclusions: Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL. Keywords: Quality of life (QoL), Cochlear implants, Families, Parents, Siblingshttp://www.sciencedirect.com/science/article/pii/S1672293018300552 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Cila Umat Nor Haniza Abdul Wahat Sakinah Che Ross Bee See Goh |
spellingShingle |
Cila Umat Nor Haniza Abdul Wahat Sakinah Che Ross Bee See Goh Quality of life of parents and siblings of children with cochlear implants Journal of Otology |
author_facet |
Cila Umat Nor Haniza Abdul Wahat Sakinah Che Ross Bee See Goh |
author_sort |
Cila Umat |
title |
Quality of life of parents and siblings of children with cochlear implants |
title_short |
Quality of life of parents and siblings of children with cochlear implants |
title_full |
Quality of life of parents and siblings of children with cochlear implants |
title_fullStr |
Quality of life of parents and siblings of children with cochlear implants |
title_full_unstemmed |
Quality of life of parents and siblings of children with cochlear implants |
title_sort |
quality of life of parents and siblings of children with cochlear implants |
publisher |
Elsevier |
series |
Journal of Otology |
issn |
1672-2930 |
publishDate |
2019-03-01 |
description |
Objectives: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). Design: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL -- and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. Setting: The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. Participants: A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. Main outcome measures: The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. Results: There were significant correlations between the overall QoL score and each of the test domains for the parents' group (p < 0.01). For the siblings' group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents' QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). Conclusions: Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL. Keywords: Quality of life (QoL), Cochlear implants, Families, Parents, Siblings |
url |
http://www.sciencedirect.com/science/article/pii/S1672293018300552 |
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